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Home   >   Tag: research

The Start of a New Decade

August 24, 2009 By FibroHaven 16 Comments

I turn forty this week. It is a milestone I am eager to embrace. I know, we women are supposed to fight aging with any means possible, but not me. Bring it on! I spent my twenties in a haze of parties and adventure. Oh the fun I had! I paid for that fun in my thirties. My thirties have been a decade of pain and frustration. After developing Fibromyalgia in my late twenties, I spent most of my thirties a slave to my symptoms. But that is all changing. It started with this blog, and all the research I do to stay informed and up to date. Knowledge is power I tell you. I am learning more and … [Read more...]

Filed Under: Mindful Living Tagged With: birthday, blog, chronic pain, fibromyalgia, forty, healing, health, pain, research, resources, wellness, writing

Lynne Matallana and The National Fibromyalgia Association

August 11, 2009 By FibroHaven 4 Comments

If you are not already familiar with Lynne Matallana and The National Fibromyalgia Association, you should become so. Lynne founded the NFA in 1997, and has turned her hard work and advocacy for Fibromyalgia patients into the largest nonprofit organization working to support people with fibromyalgia and other chronic pain illnesses. Lynne and the NFA are at the forefront of our Fibromyalgia crusade. Spend some time on the NFA's website and you will see that they are the leaders in Fibromyalgia awareness and advocacy. Today I want to share with you this very important video of a presentation … [Read more...]

Filed Under: FibroHaven News Tagged With: chronic illness, community, fibromyalgia, hope, Lynne Matallana, National Fibromyalgia Association, research, resources, support

I Lost Control and Liked it!

August 7, 2009 By FibroHaven 4 Comments

Yesterday was FibroHaven's monthly roundtable meeting. The topic for the meeting was "Working With Fibromyalgia." The plan was to have a focused discussion and answer questions like: Are you able to work? Did you have to change careers? Do you work full-time or part-time? Are you self-employed? Do you work from home? Are you on disability? Can you work while on disability? Topics for a very interesting conversation, right? (In fact the latest edition of Fibromyalgia Aware Magazine is focused on this topic. If you are not already subscribed, I highly recommend you do and start … [Read more...]

Filed Under: Mindful Living Tagged With: community, compassion, Fibrohaven, fibromyalgia, research, resources, roundtable, support, support group, working with Fibromyalgia

Follow up on Dr. Whitcomb & NRCT

August 3, 2009 By FibroHaven 88 Comments

So that happened! I intended to write this follow-up post on my experience with Dr. Whitcomb and his Neurologic Relief Centers Technique last Monday, but have been sidelined by a bad flare-up. Yes, I do attribute my flare to the workshop and testing technique, but even so, I intend to give you a fair account of the workshop, although as with everything on my blog, it will be full of my opinions. It may be a lot to follow, so I hope I have managed to present a readable review. The logistics of the day went like this: I was initially invited to the workshop by a local acupuncturist who I will … [Read more...]

Filed Under: FibroHaven News Tagged With: acupuncture, blog, chiropractor, chronic pain, community, Dr. Whitcomb, fibromyalgia, fibromyalgia workshop, flare-up, FM, information, pain, research, resources, support group, treatment

No, You Are Not Seeing Double

July 28, 2009 By FibroHaven 8 Comments

If I am here, can I also be over there? Yes, I can! I am honored to say, I have been asked by Everyday Health.com to become their new featured Fibromyalgia blogger. It has been in the works for sometime, and I have been quietly posting for a few weeks now, but I have held off announcing it until their new blog software and redesign goes live. Unfortunately there have been delays, and since the link to my blog will remain the same, I have decided to go ahead and share my happy news with all of you. Fibromyalgia Health Haven is the name of my Everyday Health blog. I will be contributing an … [Read more...]

Filed Under: FibroHaven News Tagged With: blog, blogging, career change, community, disability, Everyday Health, fibromyalgia, Fibromyalgia Haven, research, support, working with Fibromyalgia, writing

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As Featured in Woman’s Day Magazine

Dannette Rusnak in Woman's Day Magazine
Moving Beyond Illness
When asked by Woman's Day Magazine to write her story of learning to live well with chronic illness, Dannette happily agreed. You can read her story here: [ Read More ... ]

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