Are you AWARE of one of the best resources for Fibromyalgia information on the web? The National Fibromyalgia Association is the leading non-profit organization dedicated to improving quality of life for people with Fibromyalgia. Their website has been a great resource for me as an FM patient, advocate, and support group leader. The NFA is focused on creating programs dedicated to spreading Fibromyalgia Awareness, like the Fibro Focus events that took place last year, which my support group was fortunate to participate in. The NFA truly is the leading authority on Fibromyalgia, so when … [Read more...]
Do This Don’t Do That
There is a lot of Fibromyalgia information on the web. In the same day - same hour really - you can read seven "expert" and yet conflicting articles. One blog (maybe mine) will tell you to try yoga, while the next will tell you to avoid all types of exercise. One expert will tell you the condition is rheumatological, and the next will tell you it is neurological. One article will tell you your symptoms will never go away completely, the next will say you can heal completely if you do this, and don't do that. And some articles simply take all the conflicting information out there and … [Read more...]
Let’s Not Call it Exercise, Let’s Call it Mindful Movement
Say the word "exercise" to a person with Fibromyalgia, and you will most likely get a negative response. Exercise is a harsh and ugly word. It has become synonymous with pain to most of us. Rare is the Fibromyalgia patient who embraces exercise. Not only does it elicit a pain response in most of us, but it also sends our defenses up. Too, too many times we have heard the unsolicited advice, "If you would only exercise you would feel much better." We could all give examples of some of the insensitive and inaccurate things we have heard, that is not at question here, but what is under … [Read more...]
30 Things About Me & One About Facebook
FibroHaven on Facebook Last month I started a FibroHaven page on facebook. I have been promoting it quietly with a link on my sidebar, and with little fanfare we are already up to over 200 participants. It is meant to be a compliment to my blog and a quick way for me to share current articles and information. You do not need sign up on facebook to participate. Just click on this link to FibroHaven on facebook and join in on the conversation. If you are signed up on facebook, click on the "become a fan" button and the daily posts will feed automatically to your home page. I hope you enjoy this … [Read more...]
Follow up on Dr. Whitcomb & NRCT
So that happened! I intended to write this follow-up post on my experience with Dr. Whitcomb and his Neurologic Relief Centers Technique last Monday, but have been sidelined by a bad flare-up. Yes, I do attribute my flare to the workshop and testing technique, but even so, I intend to give you a fair account of the workshop, although as with everything on my blog, it will be full of my opinions. It may be a lot to follow, so I hope I have managed to present a readable review. The logistics of the day went like this: I was initially invited to the workshop by a local acupuncturist who I will … [Read more...]