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Home   >   Tag: information

Online Resources for Fibromyalgia Support and Information

May 28, 2009 By FibroHaven 3 Comments

Part 3 of my series on Fibromyalgia Support and Information.   In my previous posts I listed the main social networking sites (part 1) and group forums (part 2) available if you are looking to join an online community for support, encouragement, camaraderie, or just to have a place to vent. My inspiration for putting these posts together is to help alleviate the potential for isolation if you are living with Fibromyalgia or most any chronic illness. For this post I am going to focus on general resources available, like blogs and websites. Again, this is just a partial list of what is out … [Read more...]

Filed Under: FibroHaven News Tagged With: alltop, blog, blogging, community, education, emotional wellbeing, fibromyalgia, Fibromyalgia Haven, information, National Fibromyalgia Association, research, resources, search, social networking, support, treatment

Online Social Networking for Fibromyalgia Support and Information

May 20, 2009 By FibroHaven 7 Comments

On a recent post, Conversation on Isolation, I promised I would put together a list of online resources for Fibromyalgia  and chronic illness support and information. Below you will find many - but not nearly all - links to social networking online resources. Because I am not an active participant of each site listed I am only making comments on the sites I have firsthand knowledge of. Please feel free to add to this list in the comments, or leave your thoughts, feelings, experiences on any of the listed sites. Due to the amount of information available, I am breaking this information up into … [Read more...]

Filed Under: FibroHaven News Tagged With: community, connect, emotional wellbeing, facebook, fibromyalgia, Fibromyalgia Haven, hope, information, isolation, meetup, myspace, resources, social networking, support, support group, twitter

Letter to the AP, from the President of the National Fibromyalgia Association

February 13, 2009 By FibroHaven 3 Comments

Yesterday Lynne Matallana, President of the National Fibromyalgia Association, left a comment on my blog. It was in response to the Associated Press article last week; AP IMPACT: Drugmakers' push boosts 'murky' ailment. This article has caused quite a stir in the Fibromyalgia community. In her comment Lynne took the time to address what was said and to counter any enforcement the article gives to the many misconceptions about Fibromyalgia. I felt her letter was too important to sit unnoticed among the comments on my blog, so I am copying it into a new post. I hope you will all take the time to … [Read more...]

Filed Under: FibroHaven News Tagged With: Associated Press, community, disease, donation, Dr. Clauw, fibromyalgia, FM, information, Lynne Matallana, medical research, misinformation, MRI study, National Fibromyalgia Association, National Fibromyalgia Research Association, nonprofit, pharmaceutical companies, quality of life

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Moving Beyond Illness
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