For nearly everyone I know with Fibromylagia, it is not the pain, or the fatigue, or even the restless sleep that frustrates them the most, it is the feeling of no longer being productive or able to contribute. How many of us have had to quit our jobs or restructure our lives completely because of this illness? Most of us I am sure. And for those of you still maintaining your lives and careers, it is through sheer strength and will that you are able to do so. For myself, Fibromyalgia has forced me into two career changes. I was in management at a high-pressure, fast-paced company when I … [Read more...]
Information is Power, So I am Going to Get Me Some!
Fibromyalgia is a Puzzle! Do you remember the press release I shared with you about Dr. Sarkozi and his new book The Missing Pieces of the Fibromyalgia Puzzle? Well he is the guest speaker at my support group meeting tonight. I am very pleased to have been able to schedule him. Dr. Sarkozi is a rheumatologist specializing in the treatment of Fibromyalgia. His technique is a blend of traditional and complimentary treatment, which intends to promote effective self-managed wellness. I am looking forward to his presentation. I personally believe very strongly that our best health will not come … [Read more...]
The Anthem of My Marriage
I enjoy Rob Thomas' music. His soulful voice and song writing appeal to me. With the release of his new solo album Cradlesong, fans of Rob are getting a rare and intimate look into his personal life. The first single, Her Diamonds, was inspired by Thomas' wife, Marisol, who in recent years has struggled with an autoimmune disease. Her battle isn't specifically addressed, but when interviewed about the song, Rob said "it's about how something like that makes you feel empathy. I like to write about universal emotions. Everything has a base emotion; it's just what triggers it that's different for … [Read more...]
Fibromyalgia: The Great Momentum Equalizer
Wow! Last week was bad. Hell really. One of my most intense flare-ups I have had in a while; the kind of pain and fatigue that literally distorts your facial features. The few times I bothered to look in the mirror last week and take inventory, I was amazed at how awful the stranger peering back at me looked. It was a really long week. It was nothing new. We have all been there. We will all be there again. Then why, each time I suffer that severe of a flare, does it all seem so desperate and unending? Fibromyalgia is such a bitch! Just go back and read my last post written on a good day … [Read more...]
Embrace Your Individuality and Honor Your Contribution
Yesterday was graduation day. I cheered as my niece received her 8th grade promotion and teared watching my nephew receive his high school diploma. So proud of both of them! It was a great and emotional day filled with special moments and wonderful speeches. The valedictorian at my nephew's graduation gave a funny and moving speech. She had the entire football stadium laughing with jokes about her mixed heritage - her mother is Mexican and her father is Jewish. She apologized to everyone unable to find a seat because her mother had her entire side of the family seated in the home-side … [Read more...]