In support of National Invisible Chronic Illness Awareness Week I am approaching the one year anniversary of my blog. I have grown a lot over the past 11 months. I have made many wonderful new contacts. I have learned to be more open and honest about my health - with myself, and with my family and friends. I understand more about the causes and contributing factors of Fibromyalgia. I could go on and on about my growth, but this post is not about me. This post is a celebration of you. If you were to ask me the most important thing I am taking away from this past year, I would say YOU. From the … [Read more...]
September is a Great Month for Awareness
It is estimated that more than 30 million people suffer daily from chronic pain, and and even more from chronic invisible illnesses. Fibromyalgia patients make up a good portion of those suffering, and we should be as interactive as possible with the many activities scheduled this month designed to improve chronic pain and bring awareness to invisible illness. From The American Pain Foundation: September provides a unique opportunity to highlight the work organizations and individuals do all year to improve pain treatment, raise awareness, dispel tragic myths and spark much needed change in … [Read more...]
30 Things About Me & One About Facebook
FibroHaven on Facebook Last month I started a FibroHaven page on facebook. I have been promoting it quietly with a link on my sidebar, and with little fanfare we are already up to over 200 participants. It is meant to be a compliment to my blog and a quick way for me to share current articles and information. You do not need sign up on facebook to participate. Just click on this link to FibroHaven on facebook and join in on the conversation. If you are signed up on facebook, click on the "become a fan" button and the daily posts will feed automatically to your home page. I hope you enjoy this … [Read more...]
Things I Love #8: Koko & Barks of Love
Last March I shared with you the passing of my sweet lab and companion Casey. We were best friends for 14 years, and after she passed I really didn't think I would want another dog again. After all, we still had our funny Finley to keep us company and entertain us with his goofiness. And don't forget our cats Monty & Moby, brothers-in-arms-and-antics. We have plenty of fur flying around the house thank you very much! But then Koko happened. My sister's friend Judi volunteers for an awesome animal rescue and placement service Barks of Love. Most of their animals are rescued from … [Read more...]
Lynne Matallana and The National Fibromyalgia Association
If you are not already familiar with Lynne Matallana and The National Fibromyalgia Association, you should become so. Lynne founded the NFA in 1997, and has turned her hard work and advocacy for Fibromyalgia patients into the largest nonprofit organization working to support people with fibromyalgia and other chronic pain illnesses. Lynne and the NFA are at the forefront of our Fibromyalgia crusade. Spend some time on the NFA's website and you will see that they are the leaders in Fibromyalgia awareness and advocacy. Today I want to share with you this very important video of a presentation … [Read more...]