Yesterday was FibroHaven's monthly roundtable meeting. The topic for the meeting was "Working With Fibromyalgia." The plan was to have a focused discussion and answer questions like: Are you able to work? Did you have to change careers? Do you work full-time or part-time? Are you self-employed? Do you work from home? Are you on disability? Can you work while on disability? Topics for a very interesting conversation, right? (In fact the latest edition of Fibromyalgia Aware Magazine is focused on this topic. If you are not already subscribed, I highly recommend you do and start … [Read more...]
No, You Are Not Seeing Double
If I am here, can I also be over there? Yes, I can! I am honored to say, I have been asked by Everyday Health.com to become their new featured Fibromyalgia blogger. It has been in the works for sometime, and I have been quietly posting for a few weeks now, but I have held off announcing it until their new blog software and redesign goes live. Unfortunately there have been delays, and since the link to my blog will remain the same, I have decided to go ahead and share my happy news with all of you. Fibromyalgia Health Haven is the name of my Everyday Health blog. I will be contributing an … [Read more...]
The Anthem of My Marriage
I enjoy Rob Thomas' music. His soulful voice and song writing appeal to me. With the release of his new solo album Cradlesong, fans of Rob are getting a rare and intimate look into his personal life. The first single, Her Diamonds, was inspired by Thomas' wife, Marisol, who in recent years has struggled with an autoimmune disease. Her battle isn't specifically addressed, but when interviewed about the song, Rob said "it's about how something like that makes you feel empathy. I like to write about universal emotions. Everything has a base emotion; it's just what triggers it that's different for … [Read more...]
Fibromyalgia Affects Everyone: An Interview with My Niece
My niece Dani is thirteen years old. I have been living with the symptoms of Fibromyalgia almost every day of her life. This is the only way she knows me. With the guidance of her mother and a naturally compassionate heart, she has always been very loving and even nurturing towards me. We have a great relationship and I am so proud of the young woman she is becoming. I love spending time with her and have her at my house often. She sees firsthand the difference between a "good" and a "bad" day. She is with me today and it gave me the idea to interview her for my blog. I thought you might be … [Read more...]
Online Resources for Fibromyalgia Support and Information
Part 3 of my series on Fibromyalgia Support and Information. In my previous posts I listed the main social networking sites (part 1) and group forums (part 2) available if you are looking to join an online community for support, encouragement, camaraderie, or just to have a place to vent. My inspiration for putting these posts together is to help alleviate the potential for isolation if you are living with Fibromyalgia or most any chronic illness. For this post I am going to focus on general resources available, like blogs and websites. Again, this is just a partial list of what is out … [Read more...]