My niece Dani is thirteen years old. I have been living with the symptoms of Fibromyalgia almost every day of her life. This is the only way she knows me. With the guidance of her mother and a naturally compassionate heart, she has always been very loving and even nurturing towards me. We have a great relationship and I am so proud of the young woman she is becoming. I love spending time with her and have her at my house often. She sees firsthand the difference between a “good” and a “bad” day. She is with me today and it gave me the idea to interview her for my blog. I thought you might be interested in her perception of Fibromyalgia. I know I am!
You were just an infant the day I had my accident that eventually developed into Fibromyalgia. What is one of your earliest memories of having an aunt with Fibromyalgia?
I remember that you were not always able to pick me up so much or do things together like I did with other people in the family, also I remember when we would go to places like amusement parks or Tustin Tiller Days you didn’t always go on the rides with me and C.J. (C.J. is her older brother/my nephew)
Your mom has always been very caring and compassionate about my health issues. Do you remember any advice or information she gave you about Fibromyalgia?
Yes, she always would tell me, and still does, “your auntie isn’t having such a good day so don’t be too hyper or be too much of a bug.” and that always made me know that you were not feeling too well and I understood that it was your Fibromyalgia.
Even when I am not feeling well, we always manage to have a lot of fun together. What is one of your favorite memories of a time we spent together when I was not feeling well.
My favorite day together over all, and you were not feeling well was when we went to the beach and fed the squirrels and then went to Cabo Grill and met Bam Margera and Tony Hawk.
That was a good day! The very next day we went to the beach again and got caught in a rip-tide. It was very scary for both of us, but I hated not being strong enough to rescue you. Thank goodness we were both safe. You spent a lot of time with me last summer. How did it affect you when I was not feeling well?
I always knew when you weren’t feeling well, it would upset me sometime because I knew that we weren’t going to be spending so much time together or we wouldn’t do much or go places and it was summer so I wanted to but I always understood that when you don’t feel well that you say no to something like the beach and I would know that means no.
So on the days when I was not up for going to the beach and we stayed home we still managed to spend quality time together. What would you say is your favorite way to spend time with me when I am having a “bad” day?
I like it when we just sit around and watch tv but my FAVORITE thing is poker=] (I taught Dani to play poker several years ago, and she is a shark! If you sit down to play with her, expect to lose all your money.)
If you could use just one word to describe Fibromyalgia what would it be?
What advice would you give to a friend or classmate with a loved one with Fibromyalgia?
I would first of all tell them that I have an auntie with Fibromyalgia and I would tell them its a disease that controls your body and sometimes takes time out of your life because you are so sore from doing something the day before and I would tell them that whoever it is that has Fibromalgia wouldn’t be able to do the things they used to be able to do and I would explain to them some examples that happened between us and the family concerning your condition.
Do you think we would be closer or that I could love you any more if I had never been diagnosed with Fibromyalgia?
NO!!! I could never ask for anymore of your love because I know that you love me a lot and we are already so close I don’t think we could get any closer to each other. I love you so much and you are my favorite auntie and the best auntie a niece could EVER have and just the time I spend with you and the love we share is enough for me=]
How much of your participation in this interview had to do with the $20 I promised you?
Hahahaha well you just told me right now so I was just doing this because you asked me to and because I think it was awesome to do something like this. I don’t need money to tell you how I feel about you and your condition and I love you so much you don’t need to give me money this was something for fun.
You are a wise and loving niece Dani. I am a lucky and proud Auntie!