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Living a Life of Essence in Spite of Illness

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Home   >   Tag: hope

Want to See My Vulnerable Side?

July 12, 2010 By FibroHaven 15 Comments

Last February I had the opportunity to hear a keynote address from motivational speaker and life coach Mike Robbins. Mike is a regular contributor to Oprah Magazine and Huffington Post, and has written two bestselling books, Focus on the Good Stuff, and Be Yourself, Everyone Else is Already Taken. His presentation was authentic and motivating, and pretty much everyone in the room left with copies of his books and a warm feeling in their heart. You know how it is in those moments when you get completely inspired - everything is brighter in that instant and you know your life is forever going … [Read more...]

Filed Under: Mindful Living Tagged With: blog, chronic illness, community, Fibrohaven, fibromyalgia, hope, support, vulnerability, writing

Let’s Not Call it Exercise, Let’s Call it Mindful Movement

September 22, 2009 By FibroHaven 31 Comments

Say the word "exercise" to a person with Fibromyalgia, and you will most likely get a negative response. Exercise is a harsh and ugly word. It has become synonymous with pain to most of us. Rare is the Fibromyalgia patient who embraces exercise. Not only does it elicit a pain response in most of us, but it also sends our defenses up. Too, too many times we have heard the unsolicited advice, "If you would only exercise you would feel much better." We could all give examples of some of the insensitive and inaccurate things we have heard, that is not at question here, but what is under … [Read more...]

Filed Under: Featured Articles, Mindful Movement Tagged With: chronic pain, exercise, fibromyalgia, hope, information, Mindful Movement, muscle pain, pain, Qigong, tai chi, yoga

Your Illness May Be Invisible, But You Are Not

September 14, 2009 By FibroHaven 24 Comments

In support of National Invisible Chronic Illness Awareness Week I am approaching the one year anniversary of my blog. I have grown a lot over the past 11 months. I have made many wonderful new contacts. I have learned to be more open and honest about my health - with myself, and with my family and friends. I understand more about the causes and contributing factors of Fibromyalgia. I could go on and on about my growth, but this post is not about me. This post is a celebration of you. If you were to ask me the most important thing I am taking away from this past year, I would say YOU. From the … [Read more...]

Filed Under: Mindful Living Tagged With: blog, chronic illness, community, encouragement, fibromyalgia, hope, Invisible Illness Awareness Week, love, support

Lynne Matallana and The National Fibromyalgia Association

August 11, 2009 By FibroHaven 4 Comments

If you are not already familiar with Lynne Matallana and The National Fibromyalgia Association, you should become so. Lynne founded the NFA in 1997, and has turned her hard work and advocacy for Fibromyalgia patients into the largest nonprofit organization working to support people with fibromyalgia and other chronic pain illnesses. Lynne and the NFA are at the forefront of our Fibromyalgia crusade. Spend some time on the NFA's website and you will see that they are the leaders in Fibromyalgia awareness and advocacy. Today I want to share with you this very important video of a presentation … [Read more...]

Filed Under: FibroHaven News Tagged With: chronic illness, community, fibromyalgia, hope, Lynne Matallana, National Fibromyalgia Association, research, resources, support

Today I am the Tortoise, not the Hare

July 20, 2009 By FibroHaven 6 Comments

Do you ever feel like you have bitten off more than you can chew? Man I have a lot going on right now - a lot of good things going on right now. I have teased in the past that I am working towards bigger and better things for FibroHaven. I want this to be more than just a blog where I come to relieve my tension, share my experiences, and hopefully educate and entertain you. I want this blog to be the foundation for a whole infrastructure of community, heath, and wellness, which we are all so hopefully pursuing. And I am working on it. To that end, I am finding that each day I have more … [Read more...]

Filed Under: Mindful Living Tagged With: blog, community, Fibrohaven, fibromyalgia, hare, health, hope, isolation, to-do list, tortoise, wellness, writing

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As Featured in Woman’s Day Magazine

Dannette Rusnak in Woman's Day Magazine
Moving Beyond Illness
When asked by Woman's Day Magazine to write her story of learning to live well with chronic illness, Dannette happily agreed. You can read her story here: [ Read More ... ]

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