Potential - Noun: Latent qualities or abilities that may be developed and lead to future success or usefulness. When I think of my desire to get well, the idea of being "cured" has never been my emphasis. Would it be amazing if one day we are all completely free of fibromyalgia? Absolutely! But in my quest to live better, I have never focused on a cure as my destination. Instead of focusing on a cure - something I cannot control, I have tried to focus on my potential for living better in each moment - something I can control, and on building momentum during the good moments and minimizing the … [Read more...]
5 Reasons Fibromyalgia Awareness Campaigns are a Good Thing
The month of May is recognized as Fibromyalgia Awareness month, with May 12th being the official Fibromyalgia Awareness Day. So what does all this awareness mean? And how is it really benefiting us? If you have been diagnosed longer than a few years, you most likely recognize the shift in the awareness and overall understanding of fibromyalgia. Yes, there are still uneducated nay-sayers out there, but the gap between reality and perception is definitely closing in and this is a very good thing. Awareness is key! So again, what does all this Fibromyalgia Awareness mean and how do we … [Read more...]
My Love Has Not Faltered
A good friend and very wise soul said to me the other day - "It's awesome that you've got such a love for yoga. Although I have to admit it seems a little sad for FibroHaven that it is no longer the light of your life...I think the two (yoga and FH) will mesh together eventually." It is true that my current journey in yoga teacher training school is keeping me from the work I began with FibroHaven. I write less here, I share less on facebook, and I am scheduling fewer in person meetings. But my love of FH has not faltered. The truth is, I am just doing what I frequently urge each of you … [Read more...]
Message From Jan Chambers, President of the NFMCPA
On March 12th I was happy to post a much anticipated update to the status of the National Fibromyalgia Association. From it we learned of Jan Chambers and her recently established non-profit The National Fibromyalgia and Chronic Pain Association, and of the several NFA programs that have been transfered and are now going to be preserved by the NFMCPA. Because of the confusion and concern that remained about Jan and the NFMCPA, I reached out to her and asked if she would be interested in making a statement about the work she has been doing and about the future intentions of the NFMCPA as a … [Read more...]
Every Architect Needs a Blueprint
Architecture is the learned game, correct and magnificent, of forms assembled in the light. ~Le Corbusier I have been thinking a lot lately about how I can translate the improved health and continued healing I am experiencing into advice and encouragement for others. As the architect of my own health, the best way I can do this is to document my journey and explore the thoughts and philosophies with which I approach my wellness. Like the quote above says, we need to create in the light, and the more knowledge we have, the brighter our lights shine. First I should correct my wording - I … [Read more...]