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Living a Life of Essence in Spite of Illness

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Home   >   Author: FibroHaven

Unexpected Kindness

December 23, 2008 By FibroHaven 1 Comment

I was inspired to write this post by Moonbeam McQueen and her Blue Buffalo post. A really nice man did a really nice thing at the best possible time and Moonbeam wrote a lovely post about it. I encourage everyone to go read it. Moonbeams's post was simmering nicely in the back of my brain yesterday while I was having lunch with my sis and my niece. My niece loves to dig through my purse - she has been doing it since she was a toddler and for the life of me I can not imagine why. My purse must be so boring compared to her Mom, the glamour Queen's! I keep a notepad in my purse to help … [Read more...]

Filed Under: Mindful Living Tagged With: blogging, chronic pain, fibrofog, fibromyalgia, flare-up, kindness, Moonbeam McQueen, travel

Current State of Acceptance

December 21, 2008 By FibroHaven 2 Comments

I have no idea how devoted bloggers manage to keep their posts up in December. I am desperately behind. No time to research and write an interesting and/or educational post, so I thought I would just write about how busy December is and how difficult it is for me to manage it all with Fibromyalgia. Busy for me with FM is different that it used to be - parties, dinners, lunches, shopping, decorating - I used to thrive on everything Christmas. Now I have to pace myself. I no longer decorate rooms with Christmas paraphernalia, now I am happy to have a simple tree decked out with all of my … [Read more...]

Filed Under: Mindful Living Tagged With: blog, blogging, Christmas, decorating, fibromyalgia, FM, Polish Glass Ornaments, pressure, shopping, writing

Score One For the Support Group

December 17, 2008 By FibroHaven 9 Comments

It did not take long for my moderator responsibilities for the Fibromyalgia support group to get interesting. This past weekend one member showed her ambition and several others showed their displeasure. I organized the support group through an online social networking site. They are masters at making it easy and organized to start your own group. Before this weekend, the only requirement to join my group was to live locally and be suffering from Fibromyalgia and/or chronic pain/illness. Of the 23 members, 22 joined because they were genuinely looking for information, coping skills, community … [Read more...]

Filed Under: Things I Love Tagged With: carb cravings, compassion, coping skills, customers, e-mail, fibromyalgia, FMS, inflamation, low energy, Monavie, multi-level marketing, sales, sales pitch, social networking, support group

The National Fibromyalgia Association Pledge to Care

December 11, 2008 By FibroHaven 9 Comments

I have just recently become a member of the National Fibromyalgia Association. The NFA is a 501(c) 3 nonprofit organization whose mission is: To develop and execute programs dedicated to improving the quality of life for people with fibromyalgia. Their website is full of resources and articles about Fibromyalgia, as well as information on programs and regional support groups.   In January of this year they began a campaign called Pledge to Care. The Pledge to Care is a way for family members, friends, and healthcare providers to show their support to persons with Fibromyalgia by making a … [Read more...]

Filed Under: FibroHaven News Tagged With: compassion, educate, family, fibromyalgia, friends, invisible illness, medical care, National Fibromyalgia Association, pledge, Pledge to Care, progress, support, support group, support system

Background Noise

December 10, 2008 By FibroHaven Leave a Comment

I had a good day yesterday, a really good day. It was the kind of day when the pain and fatigue of Fibromyalgia is just faint background noise. Like the noise from the street that you have to really listen for to even remember it is there. And my head! My head was oh so clear and cognitive. Every thought and memory came with clarity and ease. Yesterday was a great day, a day of possibility and I was awake and alive for every moment of it.   So I embraced yesterday. I took full advantage of yesterday. I used yesterday to its fullest and enjoyed every second of it. Yesterday is the reason I have … [Read more...]

Filed Under: Mindful Living Tagged With: cognitive functioning, fatigue, fibromyalgia, hope, live, pain

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Dannette Rusnak in Woman's Day Magazine
Moving Beyond Illness
When asked by Woman's Day Magazine to write her story of learning to live well with chronic illness, Dannette happily agreed. You can read her story here: [ Read More ... ]

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