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Living a Life of Essence in Spite of Illness

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Home   >   Author: FibroHaven

The Anthem of My Marriage

July 3, 2009 By FibroHaven 19 Comments

I enjoy Rob Thomas' music. His soulful voice and song writing appeal to me. With the release of his new solo album Cradlesong, fans of Rob are getting a rare and intimate look into his personal life. The first single, Her Diamonds, was inspired by Thomas' wife, Marisol, who in recent years has struggled with an autoimmune disease. Her battle isn't specifically addressed, but when interviewed about the song, Rob said "it's about how something like that makes you feel empathy. I like to write about universal emotions. Everything has a base emotion; it's just what triggers it that's different for … [Read more...]

Filed Under: Things I Love Tagged With: anthem, chronic illness, Cradlesong, emotions, empathy, family, fibromyalgia, Her Diamonds, love, marriage, Rob Thomas, support

Fibromyalgia: The Great Momentum Equalizer

June 29, 2009 By FibroHaven 20 Comments

Wow! Last week was bad. Hell really. One of my most intense flare-ups I have had in a while; the kind of pain and fatigue that literally distorts your facial features. The few times I bothered to look in the mirror last week and take inventory, I was amazed at how awful the stranger peering back at me looked. It was a really long week. It was nothing new. We have all been there. We will all be there again. Then why, each time I suffer that severe of a flare, does it all seem so desperate and unending? Fibromyalgia is such a bitch! Just go back and read my last post written on a good day … [Read more...]

Filed Under: Mindful Living Tagged With: blog, blogging, chronic illness, cognitive functioning, community, fatigue, fibrofog, fibromyalgia, Fibromyalgia Haven, flare-up, pain

I Am Feeling So Lucky and Supported!

June 19, 2009 By FibroHaven 12 Comments

Last night I had another great Fibromyalgia support group meeting. The structure of the meeting was new for the group; each of us brought books we have read that have had a positive impact on our lives in one way or another. Members brought books on topics from self-help and memoir writing to Lake Wobegon. A very clever member shared a book that has had the greatest impact on helping her with the dreaded fibro fog - a notebook! Seriously, everyone of us should have one close by at all times, and what ever you do, don't lose it like I did mine. Devastating!   As each meeting does, last … [Read more...]

Filed Under: Things I Love Tagged With: blog, cognitive functioning, community, compassion, fibrofog, fibromyalgia, Fibromyalgia Haven, luck, research, resources, support group, twitter

Fibromyalgia Newsletters are a Great Information Resource

June 17, 2009 By FibroHaven 4 Comments

Every morning I sit down at my computer and go directly to my e-mail. Usually much has transpired since I last checked in (because my "morning" is most people's afternoon). I subscribe to many heath & wellness site newsletters - WebMD, ProHealth, Everyday Health, etc.. Most newsletters come once a month, and I am always anxious to check out the article headlines to see what I am going to read first.   This morning I found ProHealth's June newsletter, Fibromyalgia HealthWatch. I have read many interesting Fibromyalgia articles on ProHealth. That is where I learned of the Fibromyalgia … [Read more...]

Filed Under: FibroHaven News Tagged With: community, exercise, fibromyalgia, information, newsletters, nutrition, ProHealth, research, resources, supplement

Embrace Your Individuality and Honor Your Contribution

June 12, 2009 By FibroHaven 7 Comments

Yesterday was graduation day. I cheered as my niece received her 8th grade promotion and teared watching my nephew receive his high school diploma. So proud of both of them! It was a great and emotional day filled with special moments and wonderful speeches. The valedictorian at my nephew's graduation gave a funny and moving speech. She had the entire football stadium laughing with jokes about her mixed heritage - her mother is Mexican and her father is Jewish. She apologized to everyone unable to find a seat because her mother had her entire side of the family seated in the home-side … [Read more...]

Filed Under: Mindful Living Tagged With: chronic illness, community, compassion, contribution, emotional wellbeing, fibromyalgia, graduation, hope, individuality, lesson, life, love, self acceptance

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As Featured in Woman’s Day Magazine

Dannette Rusnak in Woman's Day Magazine
Moving Beyond Illness
When asked by Woman's Day Magazine to write her story of learning to live well with chronic illness, Dannette happily agreed. You can read her story here: [ Read More ... ]

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