On a recent post, Conversation on Isolation, I promised I would put together a list of online resources for Fibromyalgia and chronic illness support and information. Below you will find many - but not nearly all - links to social networking online resources. Because I am not an active participant of each site listed I am only making comments on the sites I have firsthand knowledge of. Please feel free to add to this list in the comments, or leave your thoughts, feelings, experiences on any of the listed sites. Due to the amount of information available, I am breaking this information up into … [Read more...]
Are You Aware? Fibromyalgia Awareness Day is May 12
History of Fibromyalgia Awareness Day from the NFA In 1993, May 12 was designated as the International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) by Tom Hennessy, the founder of RESCIND, Inc. (Repeal Existing Stereotypes about Chronic Immunological and Neurological Diseases), to memorialize the birth date of Florence Nightingale, the English army nurse who inspired the founding of the International Red Cross. Nightingale contracted a paralyzing, CIND-like illness in her mid-thirties and spent the last 50 years of her life virtually bedridden. Despite her … [Read more...]
Spontaneity? Is it Possible with Fibromyalgia?
Heck yeah it is possible! Today my husband and I did something spontaneous and I lived to tell the tale. Good thing too, because I needed something to write about on day two of my 30 in 30 writing assignment. It began as an average Sunday morning - sleep in, go to a leisurely breakfast at our favorite cafe, hit the grocery store and buy something to grill for dinner, head back to the house, walk the dog and then assume the position - me at my computer and Rob wherever he lands with his laptop. Rob made a call to one of his friends who just happened to mention he was walking around Balboa … [Read more...]
Leave a Comment, You May Make a New Friend
When I began my blog last October it was most definitely a selfish endeavor. I wanted (and needed) a space of my own to vent, process, absorb and share what my life with Fibromyalgia is all about. Since the birth of my blog, I have had a personal awakening and now understand that I am so much more than what Fibromyalgia has taken away from me. Writing about my experiences has given me back the control that I let FM take away from me so many years ago. I have become more accepting of how my life has changed and more hopeful for what my future holds. The best part of my blog though has been … [Read more...]
Letter to the AP, from the President of the National Fibromyalgia Association
Yesterday Lynne Matallana, President of the National Fibromyalgia Association, left a comment on my blog. It was in response to the Associated Press article last week; AP IMPACT: Drugmakers' push boosts 'murky' ailment. This article has caused quite a stir in the Fibromyalgia community. In her comment Lynne took the time to address what was said and to counter any enforcement the article gives to the many misconceptions about Fibromyalgia. I felt her letter was too important to sit unnoticed among the comments on my blog, so I am copying it into a new post. I hope you will all take the time to … [Read more...]