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Magnesium Malate and Fibromyalgia

2008 October 24

In a continuing effort to live well with Fibromyalgia I am going to be researching and trying new and different things to help maintain my health.  I will report on my research and my own personal experiences, but I am not a doctor and therefore will not be telling anyone to try what I do.  If you think you may benefit from my experiences, please check with your doctor to see if it is right for you.

 

I have read repeatedly that Magnesium Malate may significantly reduce pain in people with Fibromyalgia by increasing muscle efficiency.  But for me to try something new, it is not enough to read that it helps.  I need to understand why it helps, so I did more research on the topic (what did we do before the internet?) and here is some of what I learned.

 

The following quote is from Fibromyalgia: A Journey Toward Healing by Chanchal Cabrera.  She is a medical herbalist and clinical aromatherapist who has taken a holistic approach to understanding and treating Fibromyalgia.

 

Malic acid plays an essential role in the metabolism of glucose and the production of energy through the Krebs cycle.  It tends to spare oxygen and provide greater stamina and endurance in muscle cells.  It is found in abundance in apples and may contribute to the traditional use of apple cider vinegar as a treatment for rheumatism.  Research from the Texas Health Science Center in San Antonio demonstrated significant benefit from the use of magnesium malate in FMS.  Malic acid also helps to remove aluminum, which may contribute to significant cellular disruption, from the tissues.  Doses up to 1,500 mg/day are normal.  It is often taken in the form of magnesium malate and this is particularly helpful in FMS.

 

This seems logical to me.  If there is truth to the theory of researchers who believe that there is a malfunction in the body’s ability to manufacture energy for people with FM, then it makes sense to take a supplement like Magnesium Malate which can help increase muscle endurance.

 

The fatigue I feel sometimes is simply irrational.  I wake up tired.  I have a nice relaxing day and I am tired.  Could it be that my muscles are not getting the oxygen they need to produce energy?  Could it be that my muscles burn energy faster than they can produce it?  Could it be that I am magnesium and/or malic acid deficient?  These are all theories from researchers, and if magnesium and malic acid have been proven to be important substances in the manufacture of energy – well then sign me up. 

 

I don’t know if it will work for me.  The brand I bought is 1000 mg per pill and it suggests taking between 1-3 each day.  I think I will start slow and just take one a day.  One of the reasons I am looking to more holistic methods of treating my FM is that I do not tolerate medication well.  But my body needs these supplements so in a way it is like taking my multi-vitamin.  At least that is how I am going to approach it.

 

I will be sure to update what if any changes I feel taking it.  And I would be really interested in hearing from anyone else who has taken it and what your results were. Post something in the comments so we can get a dialog going.

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47 Responses leave one →
  1. October 26, 2008

    Hey there :) I just came to the conclusion today that I am pretty sure that I have fibromyalgia. I’ve been dealing with this pain and other symptoms for a long time, but I never read up on FM, and I haven’t had good insurance for awhile, so tests were out of the picture.

    Any how, my Mom mentioned to me the other day on the phone, “I think you might have fibromyalgia, Nicole.”

    “No I don’t, Mom…!”

    But today, I heard her nagging voice in my head, so I started reading, and man. Everything I’ve read is ME.

    I used to think it was Adrenal Fatigue Syndrome, then possibly arthritis, but this, this covers all the problems that have been plaguing me. And it feels right.

    Any how, I was just cruising around, looking for blogs, and wanted to say hey. I’m going to add you to my Google Reader ;)

    Nicole

  2. fibrohaven permalink
    October 27, 2008

    Hi Nicole,

    I am glad you can by and left a comment. I know how overwhelming it can be do the research you are, but I have to say you are doing the very best thing.

    If and when you do go to your doctor, it is best to have as much information about how you are feeling and about the research you have done. Fibromyalgia is still misunderstood by many medical professionals and you know best what you are feeling, so I am glad to see you are taking an active part in dealing with it.

    It is something that I am still trying to do better every day – listen to what my body is saying and make adjustments. I LOVE coffee, but I have learned that it can lead to toxicity and flare-ups so I have begrudgingly cut down to one or two a week, less if I am in a flare-up. As you “listen” more carefully to what your body is telling you, you also will learn what to do and not do to help manage your pain.

    If there is one simple piece of advise I can start you with, it is to drink more water. I know it sounds cliché, but it really makes a difference. I have written a little about it in “4 Simple Daily Habits to Help Manage Your Fibromyalgia” but I plan to dedicate an article just to the benefits of water.

    Please drop by often, and feel free to ask me any questions you have. That is one of the reasons I began this blog. I am really interested in helping myself and others manage Fibromyalgia.

    Best Wishes,
    Dannette

  3. Kathy permalink
    December 15, 2008

    Just a quick note. I have used magnesium (under the watchful eye of a Naturopath) and was really quite surprised that it relieved a lot of the muscle pain…you know the pain that feels like someone socked you in the arm really hard? Anyhow, two bits of advice (probably worth that much): liquid magnesium works best and go very, very slowly in increasing the amount you take. Increase your dosage too quickly and you’ll be spending your day in the bathroom. Not like I would know from personal experience :)

    Best of luck to you!

  4. January 23, 2009

    Dannette,

    Like you, I am not able to take the mainstream pharmaceuticals that are abundantly available. One that did work for me proved to be too expensive so I researched the drug, its mechanism of action and the compounds in the natural world that would have similar efficacy. After careful study I determined that magnesium would make a good substitute for my prescription drug because they both work to calm the excitatory nerves that transmit pain. I have been using magnesium ever since and have found that the chelated varieties work the best, and magnesium malate fits that requirement. I was not familiar with the malic acid-energy component, but come across the lore in my readings. I had planned to delve into it more deeply, but now you have answered my questions without further need to check the literary resources. Thank you!

    Glad I could help Karla. This topic gets a lot of traffic on my blog, and I have been doing more research on it to write a more educational article. There is a lot of information out there to weed through and I am hoping to break it all down to present a more complete picture, not just my opinion. FH

  5. michele morrison permalink
    March 25, 2009

    Hi
    at my wits end cant find any painkillers that work without even worse side effects for m.e/fb pain in head neck & shoulders want to now try magnesium but dont know which dose or kind is best do you have any ideas

  6. MiMi permalink
    July 18, 2009

    Hello……I have been taking magnesium malate combination for some time now….and it along with other vitamins and supplements have allowed me to learn to “control” my pain….I have had a slight problem with my left lower back hurting….and I hope it is not the kidneys….but my FM pain is so much better…..I tried several different kinds of medicine but always seemed to have more side effects with them than I cared to deal with…If I could only find something now for the chronic fatigue…..

    Just wanted to let you know…..

    MiMi

  7. Stephanie Santoro permalink
    August 8, 2009

    I am a 21 year old girl that has been diagnosed with Fibromyalgia last year. I have been dealing with this, unbeknownst to me, since I was in Middle School, and bad 5th grade skiing accident led to whiplash, growing up with all these pains and fatigue for so long has been bad, especially when no one belives you. I have tried Cymbalta for about a month recently and it made me feel worse. Now I am on Savella, I have been for about a month and a half, and I dont feel any difference, what makes it worse is that I am very sensative to medicine. Ive read about how Magnesium seems to help with the things that bother me the most, would that be worth stopping the Savella and taking Magnesium?

    Thanks for your time.

    • July 11, 2011

      Stephanie,
      The magnesium will definitely help support your nervous system. In our culture our nervous systems are daily attacked by EMFs (electromagnetic fields- cell phones, WiFi, computers, anything electric) which prevents our bodies from healing properly. Magnesium supports your nervous system to better fend off the constant attack.
      As for your whiplash, I don’t know that the magnesium will restore you to your pre-whiplash state. I’m not a doctor. However, I myself had severe whiplash in an auto accident that left my neck stiff, straight and with limited mobility. Recently, I met Mark Earlix who has restored the mobility to my neck with one session with him. I don’t know where you live but I know that he can do appointments on the phone sometimes. Here is his website: http://www.healermarkearlix.net . My website talks about the dangerous effects of EMF it is http://www.feelgreatlookbetter.com/EMR_Protectors.html

  8. Mark Robinson permalink
    August 17, 2009

    I am a 55 year old male who has suffered from fibromyalgia/chostrochondritis for years. The worst part is the
    extreme fatigue and tiredness that has occurred. I was reading about
    magnesium on the internet and decided to give it a try. Have been
    taking it for a week now and I truly believe it is helping the muscle
    aches/fatigue. This is a godsend to me.

  9. Anna Murphy permalink
    August 17, 2009

    I have read nothing but good on the internet about taking malic acid with magnesium. I tried it myself until I ran out of the malic acid LOL. Now I will get the mag malate. Dr. Oz describes a combo vitamin with calcium citrate, magnesium malate, vitamin D that sounds like something I want to try, and he wasn’t hyping a particular brand. I have been taking only 400mg of mag oxide, so I think I’m not taking enough.

    I need to do more research about the use of oral mag (pills) and soak combos. I have RLS so bad that I have given in and decided to try the soaks at bedtime. I don’t know if I should be concerned if the combo will have consequences.

  10. August 29, 2009

    Funny story…got a coupon for free shipping from a place called SaltWorks( http://www.saltworks.us/ ) so I bought a 25 lb. bag of epsom salts and another 25 lb. bag of Bokek, which is Dead Sea Salt.

    I’ve taken a lot of epsom salt baths before…but always in the evening. However right now I’m trying to wean myself off the drugs and yesterday morning I was miserable. I hadn’t slept much the night before because of the titering down of the drugs and I was tired and sore and couldn’t just pop a pill to fix the problem.

    So I decided to take a bath based on the instructions that came in the box…eh, with an extra cup full of the sea salt. What could it hurt?

    I took the bath at 8am, soaked for 20 minutes and felt much better. But by 9am I couldn’t keep my eyes open and I was out cold until the early afternoon.

    So no more epsom salt baths in the morning, and stick to the recommended amounts, I think!

  11. fibro/lupus queen permalink
    September 10, 2009

    I have had almost a week of no pain, and I am trying to figure out if it is the magnesium malate I started taking. I have been taking some different enzymes before and with the mag malate, and I am so shocked with the pain level change. I have been taking some very strong pain meds and have been in pain non stop for almost four years. I stopped taking the pain meds and I think went into a bit of withdrawal last night, I didnt cut down, just stopped because I didnt have hardly any pain. I need to be more careful.
    As for the mag malate, I really think that is what is causing the abrupt change inthe pain, Iam also dealing with a huge increase in my energy level, so much so that I feel a bit anxious and not able to sleep well. (Not a new thing, the lack of sleep, but not from this much energy.) I have been searching the internet tonight to find out more about this suplement, as it was suggested by a friend and I didnt really research it before taking it. (I didnt really expect it to do anything, especially since nothing has helped me much before.) I am very sensitive to meds as well, so perhaps I am experiencing a raised level of reaction to this too.
    Well what ever it is, I am so greatful to be having so little pain right now, wondering how long this could possibly last, and feeling like going for a walk. So wierd to feel that way at the end of the day.

  12. Sharon ONeill permalink
    September 14, 2009

    I have just weaned myself off Cymbalta because I have gained mega lbs. (I have never had a weight problem in the past?)What is the combination supplement that Dr. Oz recommends? How much of each? The sooner I start this the quicker my pain level will decrease. Thanks! Sharon

  13. September 29, 2009

    Thank you Annette for your kind comment. I appreciate your acknowledgment of what I am trying to accomplish here.

    As for our age, the average age of the members of my local support group is 40-50, but we even have a couple of teen members. As our environment continues to become more and more toxic, I am certain the cases of FM in younger patients will continue to rise. Physical traumas are a major cause of FM, but so are emotional traumas, and environmental toxins – our food, medicines, air quality, etc..

    Please, feel free to mention the brand name of the product you are recommending. I am curious to know it as I am sure others will be.

    What you wrote about people with FM feeling and sensing things others cannot is a deep belief of mine. I think it is one of the things that predisposes many of us to the condition. I may just have to borrow your phrasing of it: “an alignment of our energy vibrating so fast that our poor bodies can’t keep up with the movement…” Beautifully said! Thank you for the prayers Annette.

  14. September 29, 2009

    I use Tropical Oasis Liquid Calcium Magnesium Dietary Supplement (Great Tasting Orange Flavor One Tablespoon Daily) Purchased at GNC Keep it cold in refrigerator. Sometimes I take 2 Tablespoons if I’m in a flare. Also purchased liquid Glucosamine, Chondroitin,MSM (Mixed Berry Flavor) Brand name Wellesse. From GNC, also keep cold in frig. Very easy to swallow and I do not feel nauseous afterward. Not too expensive. Both have vit D, but I also take a mini capsule of vit D 5000 IU 2x week ( My blood work revealed that I was very deficient last year). GNC also carries a liquid Vit B complex in dropper, tastes good too. I don’t like the big “horse” pills, so liquid is the answer for me. Hope this helps some of you. Together with you, Annette

  15. tammie permalink
    December 6, 2009

    hello to all , I want to say what a nice site this is. Very informative and personal. I have been suffering from the same symptons as the people Ive been reading about. For 3 yearsI have lived in constant pain. I have tried PT, yoga, stretching, chiro and accupuncture with very little relief. I thought that my aches were from a sking accident 4 years ago. Recently I have begun to have panic attacks at night, that would wake me up from a dead sleep. I was rx’d xanax and I was happy, as did not have any pain. Then I was afraid I would be addicted to them but, more afraid of the pain and panic attack. I roamed the web and found that zinc helps with muscle tension. I woke up this morning thanking the universe and the Creator that I slept thru the night without pain and a xanax. I am still in awe over it. I feel for anyone who suffers from constant pain. Never give up!There is hope. ~*~ peace and love

  16. Swami permalink
    January 18, 2010

    all of you are going to notice that your symptoms came on after an event whether physical or emotional.

    Think retro virus. These lay dormant in the system and are triggered to erupt to the surface and begin their march in whatever way your personal DNA and structural weaknesses dictate. Some of this is and mostly heriditary, but a component always overlooked by mainstream medicine is vaccines. All of this started in the 50′s.

    For some vibropathic medicine is helpful. For others it will be an emotional breakthrough, still others it might just be a simple ingredient such as magnesium malate. That is why it seems to be phantom like. You are all snow flakes unique and no one, holistic nor allopathic can give you one definitive formula for wellness. Some things will be givens, but the degree of recovery will vary even with foundational nutrition.

    Ask your body. Listen. Then let your higher self tell you. It will be a very quiet response. It might be forgive, it might be pursue, it might be something very butterfly like.

    This is your divine dance, not a malady, but a chord struck that requires a harmonic response. A like chord.

    What is your greatest tragedy will be your grandest triumph.
    This is forcing you to re-examine what you call life.

  17. ronda permalink
    January 23, 2010

    Hi
    I am beginning to think I have FM after doing some research. I went to my MD, but she didn’t seem the least bit concerned. I sort of felt like she thought I was a hypochondriac. (sp?) I have had 3 or 4 so called “flare-ups”. It feels like I am getting the flu. Extreme pain and spasms in my legs and then it moves throughout my hips, arms and back. I can hardly walk up the stairs in my house. It also seems like I’m in a fog. A bit disoriented at times… just not quite alert. I have trouble sleeping all the time and when I do go to sleep, I have trouble staying asleep. I have had IBS for years. I have also had RLS for a long time. Does any of this sound like FM to any of you? Do you have these symptoms? What kind of MD should I look for to help me? Thank you in advance.

    • Sherri permalink
      April 19, 2011

      You need to see a Rheumatologist, regular MD’s are not experienced in this field. However,I feel that your MD should have recommended you go to the Rheumatologist. It wasn’t until I seen one that I was diagnosed correctly.I am new to this journey as I was only diagnosed 3 weeks ago. I also am very sensitive to medicines so have started taking Magnesium Malate. I have been on this for several days and am hoping that it works as well as I have heard.I wish you luck in your journey and just do alot of research it will be your best friend :)

  18. veronica permalink
    February 3, 2010

    Magnesium malate held me alot, my Rheumatologist suggest I take it and it really help. I also use T.E.N unit device to stop the pain.

    • fibrohaven permalink*
      February 8, 2010

      I have a TENS unit but have not used it for some time. It was the only part of physical therapy that ever helped me. Maybe it is time to break it out! Glad the magnesium malate is working for you Veronica.

      [WORDPRESS HASHCASH] The poster sent us ’0 which is not a hashcash value.

  19. Katherine permalink
    March 1, 2010

    Hello to all fibro warriors!
    I too have been suffering from pain and chronic fatigue and was diagnosed FINALLY with Fibromyalgia. Although there is no cure, at least I had a name to why I felt like I have.

    After years of dealing with doctors and specialist, I finally found a wonderful Rheumatologist that wasn’t so quick with her prescription pad. I had been on so many prescription drugs all of which didn’t help, but you’re told it’d be worse if you didn’t take them. Anyways to try to make a LONG story short… she put me on suppliments and took me off all prescription drugs dealing with my fibro issues.

    I’ve been on them now for 2 months and I’ve actually cried about the relief I have received. I was very doubtful ‘suppliments’ would help, but for me, they have saved my life! Literally.

    Please don’t start these if you are on other prescriptions unless you are discussing it with your own physician. This is the list of suppliments she has put me on:

    1st. month:
    Calcium (500mg tab)1 tab 3 x’s daily with meals

    Vitamin D ( 400IU) 1 tab 2 x daily with meals

    Magnesium Malate (1000mg tab) 1 tab 3 x’s daily with meals. * special note*( you might want to start off with half tab- 500mg tab 3 x’s daily at first and increase to 1000 mg tab as you can tolerate) also make sure its not just magnesium .. be sure its magnesium MALATE (I bought at a vitamin shop- couldn’t find the right one at department stores)

    Manganese (50mg) 1 tab at dinner

    after a month add these
    Thiamin B1 (100mg) 1 tab at dinner
    Co Enzyme Q10 (60mg) 1 tab 3x’s daily with meals

    This has been life changing for me, I pray it will be the same for you.

    • fibrohaven permalink*
      March 1, 2010

      Katherine you are awesome! I know so many people will appreciate you sharing the supplement regiment you are on. It is wonderful to read about the great results you are experiencing. I hope your quality of life continues to improve.

      I know I am feeling much better just with the magnesium. I think it is time I try Vitamin D too. I hear too many good reports to put it off any longer.

      My only note is to those of you reading this. If you are interested in starting a similar supplement regiment, my advice is to always consult your healthcare provider. Not all of our doctors are so progressive and quick to put down their prescription pads as Katherine’s, but as she noted, there are side affects to anything we put into our bodies – natural or synthetic.

      Thanks Katherine!

  20. FibroTeacher permalink
    March 29, 2010

    I have FM and CFS. For months I dealt with the pain like so many. Then I started to read and research. I changed my diet first. No fried, fast food, refined sugar, high fructose corn syrup, MSG, etc. And most importantly, lots of water and foods high in Mg. I also began to take a product called Natural Calm to help regulate my calcium intake and restore Mg levels. Along with a GOOD multivitamin(spend a little extra money on one without fillers that is ALL NATURAL), I have seen improvements with my joint pain and fatigue. I still have my bad days, but my good ones have much more energy that before these changes. Good luck to all :-)

  21. Jake permalink
    April 29, 2010

    Great Stuff! I just bought source naturals magnesium maleate today and cant wait to start! Im 28 and feel so sore and achie that i can barely push my little girl on the swing! Every docotor is in denial of FMS they all want to believe its arthritis….

    • fibrohaven permalink*
      April 29, 2010

      I hope the magnesium brings you relief Jake. I know if works for me. Most importantly it has improved my sleep tremendously. I can’t imagine how frustrating it must be as a parent to suffer so much physical pain it interferes with quality time with your daughter. My best to you both!

  22. MILES permalink
    July 13, 2010

    Hi All,

    Interesting comments…

    Two months ago I experienced aches and pains in my calves….along with increasing cramps twitches etc. I have had chronic back problems for most of my life..but the leg pains are new. I am not sure I have FM or CFS yet..that is under investigation..however the physio I am seeing has seen my symptoms in a few other people he had been treating previoiusly….
    I read that magnesium helps with muscle twitching…so I took some that I had alreadly had in the cupboard given to me by a Kineseologist two years ago..this was Magnesium Malate..with in 2 days I was feeling much better…at this time I did not know about the Malic Acid side of things…The Malate ran out within a week (all I had left) so I bought some Magnesium Citrate…this did not work…and the pains returned.
    I then did some research about CFS and Mag Malate was mentioned..it was just a coincidence i was taking the “right” vitamin!…
    I then found out some information about the Kreb’s Cycle and that your body needs Malic Acid for this process ….the research also mentioned that if you have increased yeast in your body this interrupts the Kreb’s Cyle process with tartaric acid.
    Here is the link:
    http://www.greatplainslaboratory.com/home/eng/fibromyalgia.asp

    This is suggesting Tartaric Acid is produced by yeast which is caused by a high carb diet such as bread pasta rice etc. (also elevated if you are diabetic or glucose intolerant)…to test if you have too much yeast in your body, spit into a glass of water first thing in the morning…if your saliva does not disolve and goes either cloudy or looks like a jelly fish then you have too much yeast in your diet (caused by high carb foods)…cutting high carbs seems help FibroTeacher..infact the western high carb diet is responsible for all chronic illnesses (see the very good Barry Groves website http://www.second-opinions.co.uk)

    The “yeast” connection is very interesting as FM often occurs in women. Women have more yeast infections than men.

    My spit incidently looked like a Man-o-war!

    The yeast connection maybe a long shot…..like with most diseases in the Western world…most are caused by eating too much carbohydrate….

    Wild animals do not have chronic illnesses…..Western pets do!..western pets are fed pet food which contains high carbohydrate.

    Good luck everyone!

    • July 14, 2010

      This is a great and informative comment Miles. I really appreciate all the research you have done and you sharing it here. I am still taking daily magnesium and it continues to help me. Also I cut out gluten, which naturally cut down on my card intake. I believe, like you, that our western diet is responsible for contributing to chronic illness. I will look at the resources you provided. Good luck to you too!

  23. July 5, 2011

    I am going to try the magnesium malate. ihave tried so many things,but no help. i am so tired and am so sore most of the time. i work every day and find it hard to even get dressed on somedays. Does anyone know if this interacts with blood thinners?

    • July 5, 2011

      Hi Sherry, I have no idea if it reacts with blood thinners, but you should definitely check with your doctor or pharmacist. If you are able to take it I hope it works well for you. I have switched to just regular magnesium and it is still working well for me.

  24. January 10, 2012

    I suffered persistent muscle pain after a course of statins. After I told my doctor he tested my vitamin D levels and found they were insufficient. This brought some relief, but adding in magnesium oxide eliminated the pain and cramps. I’m simply making the point that magnesium on its own or Vitamin D on its own may not result in a cure.

    • January 10, 2012

      Thank you for your comment Chazza. I just want to be sure everyone understands that the posts I write are informational and largely based on my individual experience. We are all different, and respond differently to treatments and protocols. I do not claim any of the information I supply is a “cure.” Just me sharing my journey and what has worked for me. Thanks for sharing what is working for you. Information is power.

  25. March 26, 2009

    Michele I am sorry that you are in such a bad pain cycle. My best advice on the magnesium is to seek medical advice on the dose. As Kathy mentioned above there can be side effects from taking it.

    Magnesium malate contains malic acid which some professionals believe makes the symptoms of IBS worse.

    I experienced a bad case of the hives – unrelated to the magnesium malate – and stopped taking all of the supplements I was on. I have not gone back to it, because I have found other ways to improve my pain and my quality of life – yoga & Dr. Shores, my holistic chiropractor.

    If you are open to seeing a holistic practitioner I would recommend you begin there before you add anything new to your pain management. I am sorry if this is not the answer you were looking for. I am wishing you well! FH

  26. linda permalink
    April 28, 2009

    HONEY,
    GO TO YOUR HEALTH FOOD STORE! I DO MASSAGES.
    MY WONDERFUL MASSAGE THERAPIST GIVES ME A DISCOUNT FOR FREQUENT VISITS. SHE ALSO DOES REIKI.

    DO YOUR RESEARCH ….AND I MENTIONED BEFORE IN A PREVIOUS POST…SOAK IN EPSOM SALTS.

    I AM ON GABAPENTIN IT SEEMS TO HELP W/O TOO MANY SIDE EFFECTS…..
    MY RHEUMETOLIGIST TOLD ME TO READ, READ, READ!!!!
    GOOD LUCK HON
    LINDA

  27. September 29, 2009

    Michele, I am new to this site, but not to FMS. I too have most of my pain in the neck, upper back with different types of headaches ( tension, migrane, sinus). The medication that works the best for me is Fioricet (not the generic). The pills are blue in color. I’ve been using them for 20 years and I regularly have my liver health checked by a blood test every year and I have not had any problems with it. Every morning I wake up with a headache and stiffness all over. I go to the bathroom and take 2 Fioricets with half glass of water, then return to bed, pillows all around, in a seated position and mediate and pray for a half hour or so. The body seems to relax and the pain lifts off and I get very good relief. Sometimes I take another pill at 2PM-4PM. It does have caffeine in it, which for me is a good thing; it gives me energy and makes me a little talkative. No other side effects, like other pain relievers. Ask your doctor about it. It also has tylenol in it so don’t take over the counter tylenol when you are using this drug. It has a small amount of barbitruate in it; that’s the magic ingredient. My best to you…. Annette

  28. linda permalink
    April 28, 2009

    HEY KATHY,
    I ALSO HAVE FIBRO. MY CHIROPRACTOR (WHO ALSO IS A SUFFERER) HAS ADVISED ME TO SOAK IN EPSOM SALTS.
    “MAGNESIUM SUPREME” LOL
    IT SEEMS TO HELP ME QUITE A BIT…I SOMETIMES ADD
    SOME LAVENDER OIL…HELPS ME TO SLEEP.
    JUST THOUGHT I WOULD SHARE.
    BEST TO YOU !
    LINDA

  29. August 10, 2009

    Hi Stephanie. Thanks for taking the time to research and ask questions. Because I am not qualified to dispense medical advice, I can only share with you my opinion.

    I cannot recommend that you stop taking the Savella. You should discuss that with your doctor. Personally I do not take any of the prescription medications prescribe for FM, because like you, I am very sensitive to medicine. As for supplements, I took magnesium malate for awhile and stopped for unrelated reasons. I am now taking one, 400mg magnesium capsule a day, and it does seem to be helping reduce my pain symptoms. I also seem to be sleeping better.

    Here is what I believe – To get the best results it will most likely take a combination of things – like supplements, gentle exercise, good nutrition, etc.. If you are interested in adding magnesium to your protocol, make sure it does not interfere with what you are currently taking. I hear over and over again that magnesium is helping FM patients, so I think it is worth a try.

  30. MiMi permalink
    September 11, 2009

    Again, I want to share with everyone that I have learned to “control” my pain with vitamins and supplements…..I know for a fact that the magnesium malate combination supplement and Omegas plus the Vitamin D supplement are the ones which are helping me…..I do take others…but I did a trial and error process which took a lot of time and effort and I figured out which vitamins and supplements were helping me….I think everyone should at least give this a try….I told my doctor about what I was doing and that I had learned to “control” my pain…and he just gave me a weird look….then a couple of weeks after this incident, Dr. Oz wrote an article about these and I was so thankful…..since I felt like the doctor did not believe me….of course, we are the only ones who really know just how much pain that we deal with each and every day with the wrath of the dragon, aka FM….

  31. September 29, 2009

    fibro/lupus queen, it is great to read about your improved symptoms. I hope you are continuing to feel the benefits and your sleep has improved.

  32. September 26, 2009

    Hi all, this is my first time replying to the FibroHaven community, but I’ve had this disease for 21 years and “experimented” with many, many medications, treatments, supplements, healing modalities and it seems that I’ve tried almost everything that’s out there which I’ve read about on the web. What you are doing here by taking the time, effort and care to reach out to others is by far the most powerful method that we can do to help our coping and healing. I commend you and thank you. As I read through these replies, the amount of young adults that are suffering so badly saddens my heart and seems to come as a surprise. In most of the support groups I had been involved in the FMSers were about 50-65 years old. There were sometimes a few who were younger but they had been traumatized by car accidents that seemed to trigger the FMS. Anyway my prayer list just seems to get longer each day as I find more and more women with this disease. I know that I have read that men are also diagnosed, but I have not yet met one.
    There is an excellent , LIQUID form of calcium, magnesium and vit D that is available at the health store (Not sure if we could mention brand names and health store names, but it is the most popular health, nutritional store name).
    Lastly, I know that this disease is definitely rooted in our nervous systems….the way we receive and sense the messages that circulate around our bodies via the neurotransmitters.
    My best to all!! I believe that there is a special gift hidden in FMS; we can feel and sense things in various energy fields that normals cannot. We are more empathic, more telephatic, more attuned to the spiritual messages, more able to predict the future and help heal energetically. Maybe it’s a calling; maybe it’s an alignment of our energy vibrating so fast that our poor bodies can’t keep up with the movement….all our systems tire out from overwork. What do you feel?

  33. September 29, 2009

    Ahh, but now that the cold weather is approaching, those warm baths at night sound really good!!!!

  34. Dennis permalink
    September 27, 2009

    here is a book called “The Miracle of Magnesium” awesome book

    http://fibrohaven.wordpress.com/2008/10/24/magnesium-malate-and-fibromyalgia/

  35. DIANA permalink
    September 27, 2009

    i am seriously concerned about what is wrong with my muscles. The only way i can possibly describe it is it is a like a towel that you go soaking wet and then rung out. even with vicoden it does not elimate the strain my muscles feel. i basically hurt all over and i feel taking the pain pills has contributed to my pain in the long run. i have a bottle of magnesium malate and i am wondering if it does help. i don’t know if i have fibromyalgia or not. like my back right now as i lean over there is a pain in just stretching the muscles , and even pain pills don’t do a thing. how to you know if you have fibromyalgia

    diana

  36. September 29, 2009

    The only way to be diagnosed with fibromyalgia Diana is to see a healthcare provider. It is excellent that you are monitoring your symptoms and doing research, because that will help you communicate better with your doctor and will most likely shorten the diagnosis process.

    Whether you officially have FM or not, there are many things you can begin to do to help with your pain. I have written several posts that can help you. Start here: Tips for Easing Pain. Also it is very important to keep as active as possible, while honoring your limitations. Read this post on Mindful Movement. Pain with stretching the muscle is common in FM, and often it is cause from immobility.

    Keep listening to your body and learning what it is trying to tell you. The Magnesium helps me a lot, but I would again recommend consulting your doctor about taking it.

  37. September 29, 2009

    Thanks for sharing this Dennis. I will definitely check it out.

  38. September 29, 2009

    Thanks Mimi. I have been on a new protocol of magnesium, omegas, and a multi vitamin and am really feeling the benefits. I have considered adding Vit D, but am not sure if I need them. I keep reading about how important it is and that many people with FM suffer from Vit D deficiency. If you have the link to Dr. Oz article I would love to read it.

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