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	<title>Fibromyalgia Haven &#187; Invisible Illness Awareness Week</title>
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	<description>Learning to Balance Chronic Health with a Chronic Love of Life</description>
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		<title>Your Illness May Be Invisible, But You Are Not</title>
		<link>http://www.fibrohaven.com/2009/09/14/your-illness-may-be-invisible-but-you-are-not/</link>
		<comments>http://www.fibrohaven.com/2009/09/14/your-illness-may-be-invisible-but-you-are-not/#comments</comments>
		<pubDate>Mon, 14 Sep 2009 13:00:24 +0000</pubDate>
		<dc:creator>FibroHaven</dc:creator>
				<category><![CDATA[Mindful Living]]></category>
		<category><![CDATA[love]]></category>
		<category><![CDATA[blog]]></category>
		<category><![CDATA[chronic illness]]></category>
		<category><![CDATA[community]]></category>
		<category><![CDATA[encouragement]]></category>
		<category><![CDATA[fibromyalgia]]></category>
		<category><![CDATA[hope]]></category>
		<category><![CDATA[Invisible Illness Awareness Week]]></category>
		<category><![CDATA[support]]></category>

		<guid isPermaLink="false">http://fibrohaven.wordpress.com/?p=1505</guid>
		<description><![CDATA[In support of National Invisible Chronic Illness Awareness Week I am approaching the one year anniversary of my blog. I have grown a lot over the past 11 months. I have made many wonderful new contacts. I have learned to be more open and honest about my health &#8211; with myself, and with my family [...]]]></description>
			<content:encoded><![CDATA[<h3 style="font-size:1.17em;">In support of National Invisible Chronic Illness Awareness Week</h3>
<p>I am approaching the one year anniversary of my blog. I have grown a lot over the past 11 months. I have made many wonderful new contacts. I have learned to be more open and honest about my health &#8211; with myself, and with my family and friends. I understand more about the causes and contributing factors of Fibromyalgia. I could go on and on about my growth, but this post is not about me. <strong><em>This post is a celebration of you</em></strong>.</p>
<p>If you were to ask me the most important thing I am taking away from this past year, I would say YOU. From the members of my Meetup support group, to my blogging buddies, to my facebook friends and to my twitter team &#8211; everyday I am amazed by the quality people stricken with chronic illness &#8211; my chronic community.</p>
<p>You are not a passive bunch, you are passionate. Passionate to learn, and to share, and to heal. Passionate about your craft and your creativity. Passionate about your friends and family. Passionate about your causes and your concerns. And I want to honor your passion. Some of you may have read this list before, but I think it is worth sharing again. We can all use a reminder every once in a while about how valuable we are. And you are valuable &#8211; each and every one of you. Valuable, and so much more.</p>
<h3 style="font-size:1.17em;">Who You Are</h3>
<p><a rel="attachment wp-att-1511" href="http://www.fibrohaven.com/?attachment_id=1511"><img class="alignright size-thumbnail wp-image-1511" title="woman-working" src="http://fibrohaven.files.wordpress.com/2009/09/woman-working.jpg?w=124" alt="woman-working" width="124" height="150" /></a><em>You are survivors.<br />
</em></p>
<p><em>You are scientists.<br />
</em></p>
<p><em>You are strong.</em></p>
<p><em>You are seekers.<br />
</em></p>
<p><em>You are smart.</em></p>
<p><em>You are sensitive.</em></p>
<p><em>You are stoic.</em></p>
<p style="text-align:right;"><em><a rel="attachment wp-att-1525" href="http://www.fibrohaven.com/?attachment_id=1525"><img class="alignleft size-thumbnail wp-image-1525" title="frida_painting" src="http://fibrohaven.files.wordpress.com/2009/09/frida_painting.jpg?w=150" alt="frida_painting" width="150" height="150" /></a>You are resilient.</em></p>
<p style="text-align:right;"><em>You are resourceful.</em></p>
<p style="text-align:right;"><em>You are artistic.</em></p>
<p style="text-align:right;"><em>You are intuitive.</em></p>
<p style="text-align:right;"><em>You are compassionate.</em></p>
<p style="text-align:right;"><em>You are genuine.</em></p>
<p style="text-align:right;"><em>You are proud.</em></p>
<p style="text-align:left;"><img class="alignright size-thumbnail wp-image-1513" title="brave-woman" src="http://fibrohaven.files.wordpress.com/2009/09/brave-woman.jpg?w=120" alt="brave-woman" width="120" height="150" /><em>You are beautiful.</em></p>
<p><em>You are passionate.</em></p>
<p><em>You are brave.</em></p>
<p><em>You are creative.</em></p>
<p><em>You are wise.</em></p>
<p><em>You are empaths.</em></p>
<p><em>You are private.</em></p>
<p style="text-align:right;"><a rel="attachment wp-att-1516" href="http://www.fibrohaven.com/?attachment_id=1516"><img class="alignleft size-thumbnail wp-image-1516" title="community_pic" src="http://fibrohaven.files.wordpress.com/2009/09/community_pic.jpg?w=150" alt="community_pic" width="150" height="133" /></a><em>You are each different.</em></p>
<p style="text-align:right;"><em>You are complicated.</em></p>
<p style="text-align:right;"><em>You are connected.</em></p>
<p style="text-align:right;"><em>You are givers.</em></p>
<p style="text-align:right;"><em>You are a community.</em></p>
<p style="text-align:right;"><em>You are family.</em></p>
<p style="text-align:right;"><em>You are friends.</em></p>
<p><em>You love life and want to live it to the fullest.</em><img class="alignright size-thumbnail wp-image-1515" title="laughing-hopeful" src="http://fibrohaven.files.wordpress.com/2009/09/laughing-hopeful.jpg?w=120" alt="laughing-hopeful" width="120" height="150" /><em><br />
</em></p>
<p><em>You seek knowledge and understanding.</em></p>
<p><em>You appreciate empathy.</em></p>
<p><em>You have great senses of humor.</em></p>
<p><em>You have hope.</em></p>
<p><em>You are real.</em></p>
<p><strong><em>You are much, much more than your illness.</em></strong></p>
<p>Everyday you show me how valuable we all are. Everyday you impress me. Everyday you overwhelm me. And everyday you remind me that we are so much more than our illness. But just in case you do not always remember this yourself, look back over the list and take in all that you are. Pick out the ones that apply most to you, and really think about them. Focus on them for a few minutes. Say them over and over again in you mind. Be proud and say them out loud. Spend some time focusing on all that you are, not on all that you can no longer be. Your illness may be invisible, but you are not.</p>
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		</item>
		<item>
		<title>September is a Great Month for Awareness</title>
		<link>http://www.fibrohaven.com/2009/09/11/september-is-a-great-month-for-awareness/</link>
		<comments>http://www.fibrohaven.com/2009/09/11/september-is-a-great-month-for-awareness/#comments</comments>
		<pubDate>Fri, 11 Sep 2009 22:11:47 +0000</pubDate>
		<dc:creator>FibroHaven</dc:creator>
				<category><![CDATA[Fibromyalgia News]]></category>
		<category><![CDATA[live]]></category>
		<category><![CDATA[bloggers unite]]></category>
		<category><![CDATA[blogging]]></category>
		<category><![CDATA[chronic illness]]></category>
		<category><![CDATA[chronic pain]]></category>
		<category><![CDATA[fibromyalgia]]></category>
		<category><![CDATA[invisible illness]]></category>
		<category><![CDATA[Invisible Illness Awareness Week]]></category>
		<category><![CDATA[Lisa Copen]]></category>
		<category><![CDATA[The American Pain Foundation]]></category>

		<guid isPermaLink="false">http://fibrohaven.wordpress.com/?p=1497</guid>
		<description><![CDATA[It is estimated that more than 30 million people suffer daily from chronic pain, and and even more from chronic invisible illnesses. Fibromyalgia patients make up a good portion of those suffering, and we should be as interactive as possible with the many activities scheduled this month designed to improve chronic pain and bring awareness [...]]]></description>
			<content:encoded><![CDATA[<p>It is estimated that more than 30 million people suffer daily from chronic pain, and and even more from chronic invisible illnesses. Fibromyalgia patients make up a good portion of those suffering, and we should be as interactive as possible with the many activities scheduled this month designed to improve chronic pain and bring awareness to invisible illness.</p>
<p>From <a href="http://www.painfoundation.org/take-action/conquering-pain-together/" target="_blank">The American Pain Foundation</a>:</p>
<blockquote>
<p style="color:#58595b;font-size:12px;line-height:16px;">September provides a unique opportunity to highlight the work organizations and individuals do all year to improve pain treatment, raise awareness, dispel tragic myths and spark much needed change in order for people to get the pain care they deserve.</p>
<p style="color:#58595b;font-size:12px;line-height:16px;"><img class="alignleft size-full wp-image-1498" title="APF-logo" src="http://fibrohaven.files.wordpress.com/2009/09/apf-logo.gif" alt="APF-logo" width="160" height="120" />The first ever <strong>National Day of Action for Pain Awareness will be held on Saturday, September 26th, 2009</strong>.   On this day, we hope you and your community will join together, share your stories, take pictures, and show the country that together we can make a difference.</p>
<p style="color:#58595b;font-size:12px;line-height:16px;">This charge is being led by APF’s Power Over Pain Action Network (POPAN). Please visit <a style="color:#0099ff;text-decoration:none;" href="http://www.popactionnetwork.org/">www.popactionnetwork.org</a> to learn more about the network, the leaders in your state, and <a style="color:#0099ff;text-decoration:none;" href="http://www.painfoundation.org/take-action/conquering-pain-together/events/">visit the Events page</a> to get involved in or post activities happening near you!</p>
</blockquote>
<p style="color:#58595b;font-size:12px;line-height:16px;">
<p style="color:#58595b;font-size:12px;line-height:16px;"><span style="color:#000000;line-height:19px;font-size:13px;">Get involved. Sign the petition. Become an advocate for the elimination of the undertreatment of pain. Click on the events page and browse the 40 events scheduled across the country or check out their Action Toolkit and schedule your own event. </span></p>
<p style="color:#58595b;font-size:12px;line-height:16px;">
<p style="color:#58595b;font-size:12px;line-height:16px;"><span style="color:#000000;line-height:19px;font-size:13px;">If getting involved with the American Pain Foundation is not right for you, how about participating in the Virtual Conference over at <a href="http://invisibleillnessweek.com/?page_id=3" target="_blank">Invisible Illness Week</a>? <em>National Invisible Chronic Illness Awareness Week</em> is September 14 &#8211; September 18.</span></p>
<p style="color:#58595b;font-size:12px;line-height:16px;">
<p style="color:#58595b;font-size:12px;line-height:16px;"><span style="color:#000000;line-height:19px;font-size:13px;">From Lisa Copen, founder of Rest Ministries and creator behind National Invisible Chronic Illness Awareness Week:</span></p>
<p style="color:#58595b;font-size:12px;line-height:16px;">
<blockquote>
<p style="color:#58595b;font-size:12px;line-height:16px;"><span style="color:#000000;line-height:19px;font-size:13px;"><img class="alignleft size-full wp-image-1499" title="09_logo-animated" src="http://fibrohaven.files.wordpress.com/2009/09/09_logo-animated.gif" alt="09_logo-animated" width="243" height="243" />Regardless of where one’s spiritual ties are, there is an fundamental human desire to feel understood, to feel like those you love have some idea about what you are going through. One of the most difficult adjustments to illness is that you feel life is passing you by and no one around you even realizes it. We hope through our conference we can provide a place where people find the true source of being validated in their pain, how to live joyfully despite their illness, and of course, we want to increase awareness about how many suffer silently. Like our theme says, ‘A Little Help Gives a Lot of Hope.’ It really does.</span></p>
</blockquote>
<p style="color:#58595b;font-size:12px;line-height:16px;">
<p style="color:#58595b;font-size:12px;line-height:16px;"><span style="color:#000000;line-height:19px;font-size:13px;">In her continuing effort to make a difference Lisa has scheduled four speakers per day giving special presentations and taking calls from you on the phone for an <em>interactive, encouraging, and educational forum that will leave you feeling refreshed and hopeful that chronic illness doesn’t have to define who you are</em>!</span></p>
<p style="color:#58595b;font-size:12px;line-height:16px;">
<p style="color:#58595b;font-size:12px;line-height:16px;"><span style="color:#000000;line-height:19px;font-size:13px;">But wait, there&#8217;s more&#8230;</span></p>
<p style="color:#58595b;font-size:12px;line-height:16px;">
<p style="color:#58595b;font-size:12px;line-height:16px;"><span style="color:#000000;line-height:19px;font-size:13px;"><img class="alignright size-full wp-image-1500" title="09_blogging-badge2" src="http://fibrohaven.files.wordpress.com/2009/09/09_blogging-badge2.gif" alt="09_blogging-badge2" width="148" height="201" />My <a href="http://fibrohaven.wordpress.com/2009/09/08/30-things-about-me-one-about-facebook/" target="_self">30 Things About Me</a> post was another way I am participating in all of the activities Lisa organized and promoted for Invisible Illness Awareness week. And on Monday September 14, my blog post will also be dedicated to increasing awareness of invisible illness. Do you have a blog? Would you like to participate? Sign up at <a href="http://www.bloggersunite.org/event/national-invisible-chronic-illness-awareness-week" target="_blank">Bloggers Unite</a> and commit yourself to the cause.</span></p>
<p style="color:#58595b;font-size:12px;line-height:16px;">
<p style="color:#58595b;font-size:12px;line-height:16px;"><span style="color:#000000;line-height:19px;font-size:13px;">Isn&#8217;t it encouraging to learn about these efforts to improve our chronic pain and our shine a light on our invisible illness? Even if you are not capable of getting personally involved, take comfort in knowing there is a movement toward progress and change. </span></p>
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