All the things that make me a spirited chef, make me a horrible baker. I simply have no tolerance for carefully measured preciseness. I learned long ago that baking is not my forte, and I avoid it accordingly.

That being said, I recently discovered the easiest and most delicious Gluten Free Peanut Butter Cookie recipe that even this girl can master. Simple, simple, simple!

Ingredients

• 1 egg
• 1 cup sugar
• 1 cup peanut butter, any kind
• 1 teaspoon baking soda
• 1/2 teaspoon salt
• 1/4 cup chocolate chips (optional)

Directions

• Preheat oven to 350º. Prepare pans: line with aluminum foil or parchment paper, or oil generously.
• Put all ingredients into food processor and pulse until well blended. Or mix thoroughly by hand.
• Make dough into (about) 36 evenly sized balls. Arrange balls on prepared pans leaving an inch or so between them. Add chocolate chips, if using, lightly pressing one or two into the top of cookie.
• Bake until they flatten out a bit and start to brown – 12 to 15 minutes.
• Remove from oven and leave on sheet for several minutes, until they begin to firm up, then carefully remove to cooling rack

Yum, yum, yum!

But this adventure chef could not leave well enough alone!

Gluten free cookies are great, but I wanted sugar free as well (link between sugar consumption and chronic pain), so I substituted 3/4 cup Agave Nectar for 1 cup sugar (adding the chocolate chips adds sugar, so leave them off if you want sugar free cookies). To compensate for substituting a liquid for a dry ingredient, I added 1 tablespoon of Bob’s Red Mill Gluten Free Baking Flour.

The result was a moist, chewy, peanut buttery delight! I baked the cookies Friday evening to take to a Halloween party on Saturday. The cookies were a big hit! If I had not told them they were gluten and sugar free, I doubt anyone would have known.

Cookie Disclaimer

Just because something is gluten and sugar free does not mean that it is nutritionally good for you. But this is the time of year we all know we are going to indulge a little. So if we are not always going to make the best possible choices, we can at least minimize some of the indulgence. And with this recipe, you won’t even realize you are making a sacrifice.

Following up on the Progressive Relaxation guided technique of week one, in week two we learned a simple and useful technique called Mini-Practices.

Mini-Practices

For relaxation to benefit you the most, you need to learn how to relax and calm yourself upon your command. This skill can be very helpful when you are feeling increased tension or pain, but are unable to go to a secluded area to do progressive relaxation.

To Do a Mini-Practice:

1. Stop yourself in whatever you are doing
2. Take a deep breath
3. Say the word “relax” to yourself
4. Slowly exhale
5. As you exhale  focus on the sensations of relaxation
6. Allow your jaws to relax, allow sensations of heaviness to flow downward from your shoulders throughout your body
7. After 30 seconds go back to what you were doing – regardless of how well you have succeeded in relaxing

Reminders to do Mini-Practices

Your goal is to do about 5 mini-practices the first day and then gradually build up to about 20 mini-practices a day over the next few weeks. You can remind yourself to do a mini-practice in many different ways. Some people do a mini-practice every time they feel annoyed or tense. Other people do one every time they stop at a stop light or pick up the telephone. You can remind yourself to do a mini-practice by placing adhesive “dots” around the house (by the door, near your mirror) or on personal belongings (such as a watch, or pocketbook). Every time you see a “dot” you will be reminded to do a mini-practice.

It doesn’t matter how you choose to remind yourself to relax, what is important is that you practice frequently. Little by little you can develop a habit of keeping yourself relaxed throughout the day.

Learning to relax really is a skill. We live in a constant state of flight or fight. Learning to shut that down, even if it is only for 30 second increments is a powerful tool.

After practicing this technique for a week I can say it is something we should all learn and add to our coping skills toolbox. I have not counted to confirm that I am up to 20 mini-practices a day, but the cumulative affect of the number I am doing is very positive. I have a greater feeling of control over my emotions and enjoy the short sensations of relaxation. They are kind of addicting! I find myself doing one each time I wash my hands – and I am compulsive hand washer.

Try it for yourself. It is such a simple and useful technique there really is no reason not to try it. The researcher did mention that some people have an aversion to the word “relax” (feels too harsh), and if this is the case with you, it is perfectly acceptable to find your own word – chill, easy, breath, etc.

Be sure to get yourself a pack of the adhesive dots. They are a fun and useful way to remind yourself to relax.

This time of transition in my life has been trying to say the least. An emotional roller coaster would be a better way to describe it. One second I am excited by possibilities and the next second I am crushed with defeat. Sounds a lot like life doesn’t it?

It just so happens that a research study I was slated to participate in months ago started up last week. It is a local study on yoga and cognitive coping skills for the treatment of Fibromyalgia. I was hoping to end up in the cognitive group since I already have a good handle on the yoga, and  since the trials of this past month have left me in serious need of some coping skills. Fortunately that is exactly where I ended up.

Last week was our first session and we spent most of the two hours getting to know everyone in the group. Then we proceeded on to the first of the eight Pain Coping Skills we will be learning over the course of the study. Progressive Relaxation is a guided technique. While laying or seated in a comfortable position, we followed the directive of the study leader and proceeded with a focused tightening and relaxing of targeted muscles.

Starting from our heads and working our way down, we slowly and purposefully tightened and relaxed major muscle groups. It was a controlled and relaxing exercise. Before we began we rated several of our symptoms on a sliding scale – pain, fatigue, brain fog. At the end of the exercise we were asked to rate our symptoms again.

I think everyone agreed it was  relaxing and we all felt somewhat restored. But for me it did not elevate my pain. Some of my muscles that had been burning – like my upper back between my shoulder blades – did experience relief, but then other muscles where my pain was more sharp and focused seemed more painful after. It is hard to tell whether the pain actually increased from the movements or if I simply became more aware of it when the overriding burning pain subsided.

Our homework was to repeat the exercise twice a day listening to a DVD recorded by the lead researcher. My homework left me with the same experience. So I suppose I would say for me it is a good technique for burning pain, but not so good for sharp, stabbing pain.

This week we are learning a new technique, and so on throughout the eight weeks of the study. Their hope is that one, two or maybe even all eight of the skills they teach us will help us and be implemented into our daily routines. That is my hope too!

My second hope is that I will be able to continue on with the study after I have started working again. It is a possibility that it will conflict and I won’t be able to complete the eight weeks. That would be a disappointment, but I will worry about it when the time comes.

For now, I will continue on and report here what we are doing and whether or not it is helping me.

Do you have any experience with Cognitive Coping Skills/Behaviors? I would love for you to share your experience with it. Was it helpful to you? Do you continue to practice the skills you learned? Do you practice daily or do you target your practice depending on your symptoms?

One year ago today I sat down at FibroHaven for the first time and wrote this – Welcome!

In my very first post I shared what I hoped and intended to accomplish with my blog:

I have found the blogs I like best are the ones whose authors are aware they have an audience, yet they speak with a realness and simplicity.  They are authentic.  I image if I met the author they would be exactly as they sound on their blog.

That is the approach I hope to take in my writing.  I want to be real.

One year later I think my blog is exactly as real as I was hoping it would be and so much more.

I had no understanding at the time of the relationships I would form and the people who would reach out to me because something I wrote made an impact on them. I knew there was a need for a positive voice in the Fibromyalgia community, but I had no idea how much it would come to mean to me to be that voice.

My heart, soul, love, hope, spirit, and joy are in this blog. I doubt that I have ever been more proud of a personal accomplishment. Maybe that game winning home run I hit as the only girl on my little league baseball team. That was pretty cool! But seriously, FibroHaven is my baby.

Every time I read a comment like this from a recent post, I know I am doing what I am meant to do:

Thank you so much for sharing! I have only recently realized how important it is to reach out to those around me instead of hiding. I’m not weaker as a result of my illness. It is people like you that have helped me realize this. -Terri Simmons

Heart warming!

I have changed so much over this past year, and I doubt any of it would have occurred without this blog.

• I am more accepting of my illness
• I understand that I need to be my own best health advocate
• I understand the value and importance of researching every possiblity
• I recognize that there is no quick fix, no magic bullet
• I do not blame anyone or anything for my current state of health
• I have become more mindful of how my lifestyle choices contribute to my wellbeing
• I have a new spiritual awareness through yoga and meditation
• I am more in tuned to my body and my environment
• I am hopeful
• I feel loved
• I believe with all my heart that I will continue on this path to wellness and one day be symptom free
• I accept that there will be setbacks and obstacles, but that progress is still being made

If I had to give a number to my symptomatic improvement over this past year, it would be about 15%. Fifteen percent better than I was one year ago today. Wouldn’t you take that? Using the most basic of math, and not taking any variables into account, if I continue at a “15% a year” rate of improvement, I will be symptom free in just under seven years. After 13 years of living with a range of Fibromyalgia symptoms, seven years is acceptable to me.

But I don’t believe it will take seven years, simply because I cannot ignore the variables. If I had to give a number to my emotional and spiritual improvement (the variables) over this past year, it would be 60%. I am happier and more hopeful than I have ever been. I am at peace with who I am, and excited about who I am becoming. And I contribute the work I have put into FibroHaven for guiding me into who I am becoming.

I have put the work in, and I will continue to do so. I will continue to share and relate my experiences here. Some you will relate to, some you will not. But by taking the time to research and read, you are becoming your own best health advocate. Knowledge is power.

Thank you all for reading and commenting here. You are a big part of the reason I am feeling so loved and hopeful.

We all know that. So if change is constant, the only variable then is in our ability to adapt.

I was watching the Amazing Race Sunday night. It really is an interesting study on human nature and the ability to adapt to constant change – to the unknown. It is remarkable how certain temperaments rise to the top as they excel at adapting to unknown situations, while others battle themselves and their own teammates while flailing wildly at the unknown.

The ever important clue box is a great example of what I mean. Teams are given a general direction and told “that is where you will find your next clue.” So each team approaches the area not sure exactly where they must go.

Some teams calmly read their directions for more clues and talk it through, looking around together until they spot the box.

Other teams divide up to cover more ground, keeping each other updated and staying connected with their voices.

Then there are the teams that run around wildly yelling at each other, oblivious to the details of their surroundings. These are the teams that usually run past the box three or four times before spotting it. They are frantic and manic. They are out of breath, angry with each other, and completely out of tune with their environment.

For years my husband and I have joked we would make a great team on the Amazing Race. If I had to judge, I would say we would be most like the first team type – sticking together to take in our surroundings and find the clues. In fact, I am certain that is the kind of team we would be.

Change is not coming. Change is here.

Last Thursday my husband called me in the middle of his work day, except it was no longer a work day for him. After surviving many rounds of layoffs, this time he was the one terminated. He was calm when he relayed this life altering news to me. “Oh no, oh no, oh no, oh no,” was the only thing I could say. But he calmed me down and told me the one thing I believe to be universally true, “We are going to be okay.”

As soon as I slowed down long enough to recognize his calmness and listen to the truth in his words, I knew it was true. We are going to be okay.

Where we have been.

After the accident in late 2006, I tried to get back to working full-time, but my body could not handle the stress of it. My symptoms continued to worsen to the point that we both realized what I needed most was time. After much consideration, and resolving ourselves to the financial adjustments we would need to make, I quit working and have been focusing on my health and wellbeing ever since.

FibroHaven is the product of my time away from working, and I am so proud of what I have created – my blog, my support group, and my facebook community. It is through all of the FibroHaven components that I have learned so much more about who I am, why I have Fibromyalgia, and what I can do to improve my quality of life. I have a new spiritual awareness attained through the many mind-body practices I have introduced to my life, like yoga and meditation.

Each step of my journey away from work and with FibroHaven, whether I was struggling or succeeding, my husband was right there with me – taking it all in, and trying to interpret what it all means.

The time away from the stress of working has been a true gift to me. It has not been easy on our lifestyle. We gave up a lot of the comfort and luxuries that comes with two incomes. I am not healed, I am not cured, but I am better. Well enough that I know it is time for me to contribute again.

Strangely enough, something happened this week to reinforce that it is time for me to change my focus. Everyday I spend a lot of time on FibroHaven’s facebook page. It was a great complement to my blog, and a quick way to share timely, relevant links and Fibromyalgia resources. I was very happy with the work I had been doing.

Monday morning I shared my most recent blog post there, and then went off to my noon yoga class. When I came home and sat down at my computer I headed straight for facebook, but my page was gone:

The page you requested was not found.

It was like a shot to my gut – another loss. All that work gone. Disappeared! Sickening.

Today, I am kind of over it. Sad, yes. Disappointed, sure. But I recognize how much time and effort I spent on it and I realize that my time and effort are best suited elsewhere now.

You see I am part of a team, and my team has had a set back. But we are not out of the race. No way!

Where we are going.

We are not out of the race, because together we have calmly taken in our surroundings and recognized what we need to do to move on. My husband is a talented man. He will find work again. But in the meantime, I need to come off sabbatical and contribute. This means less time to spend on FibroHaven.

Not to worry. My blog is here to stay. I will just have less time for all the ancillary projects – like the now gone facebook page, and like my local support group. I am cutting meetings from two a month down to one, and I will be asking for someone to step up and assist me in running the group. There were also several other things I have been working on that will either not happen, or will have to wait.

Yesterday was our 6 year wedding anniversary. We spent the day focused and excited about our future. Change is here and we are ready to adapt – calmly, and together. I can’t wait to see where the next clue takes us.

Dear Friends,

I am pleased to announce that the Fibromyalgia Wellness Project is now up and running and ready to receive participants. This is a research project sponsored by the National Institute of Arthritis, Musculoskeletal and Skin diseases, National Institutes of Health. Its purpose is to evaluate a new web-based self-management program that aims to help people with FM discover ways to reduce symptoms and improve health through a completely personalized self-monitoring approach that takes no more than 5 to 10 minutes per day.

In using this program you will create your own personal database of symptom patterns and self-management strategies that will be analyzed by the project’s proprietary analytical methods. After sufficient use (depending on how frequently you use it–we recommend at least four times per week), the program will provide you with personalized feedback about strategies that lead to reduced symptoms for you. The feedback you receive will be derived from your own personal inputs over time, which is why your on-going participation over several weeks is needed. This allows you to experiment with different strategies and lifestyle changes (e.g., bed times, meal times, self-help practices, exercise, stresses, herbs, supplements, medications, and more) to find out what works best for you.

Please go to http://www.fmwellness.org/index.htm to learn about the project and sign up.

We will be continuing to upgrade and refine the site in the coming months. I hope you find the project beneficial, and welcome your participation.

Best regards,
William Collinge, PhD, MPH
Principal Investigator
The Fibromyalgia Wellness Project
http:www.fmwellness.org

It was several years ago now that my therapist tried to help me resolve my physical pain by dealing with my suppressed emotions. Ironically, her recommendation to me was to write. She believed that through the process of writing, my muscles would begin to let go of everything they had been storing. Unfortunately I did not get very far with her. Maybe I was not ready to hear her and understand then. Maybe the time was not right. But today as I sit here writing about it, I am so much more aware and accepting of where she was trying to guide me.

My muscles are full of emotions I have spent the last 40 years avoiding.

The pain is stored there because that is how I unconsciously chose to process it. I stuffed it deep down inside to avoid facing it, but it doesn’t just disappear, it simply manifests itself into a different kind of pain.

My muscles are inflamed and toxic because I did not have the skills to manage and deal with the crisis in the moment. Who does have the skills? They are not easy to acquire. I still do not have them, but I am working towards it. It may take me the next 40 years, but at least I am now aware.

Healing is not a simple process.

First we must really come to terms with the source of our pain. For the purpose of this post I am focusing on emotional pain, but as we all know there are many other components to our pain (trauma, infection, toxin, etc.) that make this process even more complicated.

So where do we start?

Again, there is no easy answer. Years ago I started in the most logical place, therapy, and yet it turned out not to be my actual starting point. I had years of stagnant suffering after that, waiting for my health to change, but not actively making the changes necessary for my health to improve.

Looking back on it now, I am learning from my time spent in therapy, but it made little difference in my life at the time.

My true starting point in understanding how my emotions have contributed to my pain is this blog. Writing here has allowed me to explore and examine myself in ways I never would have otherwise. It has allowed me to acquire new tools and resources to actively apply to my intention of wellness.

What does that mean?

Well it means I am no longer sitting on my couch with a tub of mashed potatoes, convincing myself that my misery entitles me to eat it. And it means that I am no longer waiting for better health to find me, I am actively seeking it out. And it means I am no longer discouraged by the many set backs, because I understand it took years for this damage to occur in my body, and it will take years for me to correct everything, but each step I take towards healing tips the balance to the path of wellness and a better life.

For me, the tools and resources I have acquired to deal with emotional pain are writing, yoga, and meditation. The combination of the three have given me a greater awareness of the mind-body connection, which I believe is essential for healing our emotional pain.

Yoga and meditation teach you to connect with and examine your body, scanning for places of tension and pain. They teach you to acknowledge and breathe into those places, and not ignore what you are storing there. It has been an amazing process of self-discovery, and both practices often leave me more emotional but less painful.

Writing is where I come to process everything. This is where I put the piece together and try to make sense of them. Without this blog, I am certain I would still be waiting for my health to change.

So how can you take what I have learned and apply it to your own path to wellness?

First, you have to be ready to take your journey. You have to be ready to do the work and the research to find the best tools and resources for you. Then you have to understand that it is a journey of endurance and not be discouraged by the inevitable setbacks. You have to believe that you are worth the effort and that better health is possible.

If you are not there yet, like I wasn’t not that long ago, keep reading, keep researching, don’t give up. Never give up! Better health is possible. Once you believe it is, your journey will begin.

Sometimes I try to set grandiose intentions – freedom from all pain, anxiety, and conflict in my life, from here until eternity. Sure, that can happen in an hour. Usually, I am still staring at the blank slate of my mind when the instructor has moved on, so I just skip setting my intention. But then I am left feeling like I missed out on an opportunity.

Today the opportunity came up again; “What is your intention?” And out of nowhere it came to me – Just let go. That was it. That simple. My intention was to let go. No more focusing on what I thought should be happening or what I might be missing out on, just be in the moment and experience it. And experience it I did. It was my best practice by far. My focus was completely on my body, the movement, and what I was experiencing. I found myself more stable and comfortable in poses that are normally problematic for me. My balance was greater. My range of motion was better. My focus was clearer. I found a wonderful balance between effort and ease. It really was a joyful practice.

At the end of each session we get into my favorite pose – savasana. That is the time where it all comes together for me. I can feel how my muscles have loosened and elongated. I can feel how the tension has left my neck and upper back. It is a time of complete joy and peace for me – my favorite part of every practice. Today I felt especially connected to everything; to the mat beneath me, to the music swirling through my body, to my breath as it expanded my abdomen and sustained me from the inside. If I didn’t discover that ancient yoga secret today, then there isn’t one.

And how simple really, I just let go and let myself be in the moment instead of in my head. Now really, isn’t this a concept we can apply to every aspect of our lives. How much less stressful would life be if we could learn to let go of what we believe is expected of us, and just be who we are in every given moment? I am probably the least flexible person in most of my yoga classes, but each stretch benefits me just as much as it does my 60 year-old neighbor who can reach her toes with ease. I need to remember that.

Today was a great experience of just letting go, but it took me many yoga practices to get there. It is something I am going to have to continue practicing too. Practice letting go. Practice being in the moment. Practice acceptance of where you are, and then you can work on reaching where you want to be. I want to touch my toes with ease one day, but it will never happen if I don’t practice.

Rare is the Fibromyalgia patient who embraces exercise.

Not only does it elicit a pain response in most of us, but it also sends our defenses up. Too, too many times we have heard the unsolicited advice, “If you would only exercise you would feel much better.” We could all give examples of some of the insensitive and inaccurate things we have heard, that is not at question here, but what is under consideration is what truth is there in those comments?

It is hard to consider the validity to a comment that has raised our defenses and left us feeling misunderstood. But what if, regardless of how misinformed the comment and commenter, there is an underlying validity to it? Should we continue to be defensive and ignore what instinctively we already know? Who are we hurting if we do this? Not them, that is for sure.

Be Mindful

The fact is, not all exercise is good or even possible for most Fibromyalgia patients, but some form of mindful movement is essential if we ever want to improve our symptoms and our overall wellbeing. And yet it seems so counterintuitive: “It hurts to move, so you are telling me I need to move?” How does that make sense?

A lot of research has been done on this topic. Article after article has been written touting the benefits of exercise for Fibromyalgia. Here is a summary of the benefits of exercise for those with Fibromyalgia from WebMD:

helps restore the body’s neurochemical balance and triggers a positive emotional state

boosts levels of natural endorphins — pain-fighting molecules

triggers the release of epinephrine and norepinephrine, hormones that are known to boost alertness

burns calories and makes weight control easier

gives range-of-motion to painful muscles and joints

improves a person’s outlook on life

improves quality of sleep

improves one’s sense of well-being

increases aerobic capacity

increases cardiovascular health

increases energy

places the responsibility of healing in the hands of the patient

reduces anxiety levels and depression

relieves stress associated with a chronic disease

stimulates growth hormone secretion

stimulates the secretion of endorphins or “happy hormones”

strengthens bones

strengthens muscles

Would your life and your symptoms benefit with even one of the listed improvements? Then let’s step back from our conditioned response to exercise and think about how we can approach mindful movement with more positive results.

Be Gentle

This really is a matter of reconditioning our response to, and expectation of movement. Societies idea of exercising for health is to push through the pain; No Pain No Gain. Absurd really, and an approach that will guarantee failure for those of us living daily in pain. Take that approach and turn it inside out and then upside down. Gentle, mindful movement is the key to exercising with Fibromyalgia.

If you are familiar with my blog at all you know I am a huge proponent of yoga. Well I learned the hard way recently that I need to revise my ardor of yoga.

I Love Yoga, But Not All Yoga Loves Me

My first experience with yoga years ago was a No Pain No Gain experience. Even though I made an attempt to explain Fibromyalgia and my limitations to the instructor, she still pushed me way beyond my means. It was an awful experience and I was done with yoga. Fortunately, Fibromyalgia has taught me to consider and reconsider everything, because, when given the opportunity to practice yoga again, I did and had a completely different experience. It was one of the greatest epiphany moments I have had. Movement without pain. Hallelujah!

But then recently I had a setback to my love affair with yoga. For financial reasons I was no longer able to attend the gentle yoga classes that were having such a positive impact on my health and my symptoms. I was forced to look for alternatives; I tried YouTube videos with no success; found a few sources on Facebook that were okay, but not great; rented a few DVD’s, not even close. Then I resorted to buying a Yoga for Beginners DVD. I mistakenly interpreted “for beginners” as meaning “gentle.” Boy was I wrong. Massive failure and major flare-up.

But We Are Resilient – Remember

So I looked again specifically for “gentle” yoga, and I found a free class being offered at a local library. My love was back. I spent the next restorative hour in mindful movement so gentle I sometimes wonder if it is really benefitting me, but it is. The result was no flare, days of improved cognitive function, better sleep, and decreased pain – all from one class!

Not All Movement is Created Equal

So you tried yoga and it hurt and sent you into a flare and now you are done with exercising. Exercising is not for you. I could not possibly understand how severely exercise hurts you because if I did I would not be telling you to do it.

I understand all of the reasoning behind not exercising, because I used them all myself for many years. And if I had tried yoga again and it had been anything other than gentle and restorative, I would still be reasoning myself out of attempting any form of movement. It is understandable. We have become conditioned by our pain. But the really great thing is that we can also become reconditioned.

First you must trust that your muscles need movement. The longer they remain inactive, the more severely they will continue to hurt, the less energy you will have, and the harder it will be for them to support your frame. Your muscles want and need to move.

Next you have to find the appropriate movement for you. It may not be yoga. Maybe it is Tai Chi or Qigong. Maybe it is some form of water movement. Maybe it is a slow and gentle walk. Find what works best for you. Find what you love and what makes your body say Hallelujah.

Finally you need to accept that you will feel sore and there may be some discomfort, but you should not become discouraged by it. Consider how long you have been inactive. Honor you body and your limitations, but do not use them as the reason for not trying.

As with all things Fibromyalgia, there is no easy answer or quick fix, but if you intend to get better, then mindful movement is a necessary step towards wellness. Do not give up if your first attempt is a failure. Regroup and recommit yourself to mindful movement. When you find what works for you the rewards will be many, including an increased range of pain free movement. And as I like to say – be sure to take baby steps to avoid the making the painful leaps.

I am approaching the one year anniversary of my blog. I have grown a lot over the past 11 months. I have made many wonderful new contacts. I have learned to be more open and honest about my health – with myself, and with my family and friends. I understand more about the causes and contributing factors of Fibromyalgia. I could go on and on about my growth, but this post is not about me. This post is a celebration of you.

If you were to ask me the most important thing I am taking away from this past year, I would say YOU. From the members of my Meetup support group, to my blogging buddies, to my facebook friends and to my twitter team – everyday I am amazed by the quality people stricken with chronic illness – my chronic community.

You are not a passive bunch, you are passionate. Passionate to learn, and to share, and to heal. Passionate about your craft and your creativity. Passionate about your friends and family. Passionate about your causes and your concerns. And I want to honor your passion. Some of you may have read this list before, but I think it is worth sharing again. We can all use a reminder every once in a while about how valuable we are. And you are valuable – each and every one of you. Valuable, and so much more.

Who You Are

You are survivors.

You are scientists.

You are strong.

You are seekers.

You are smart.

You are sensitive.

You are stoic.

You are resilient.

You are resourceful.

You are artistic.

You are intuitive.

You are compassionate.

You are genuine.

You are proud.

You are beautiful.

You are passionate.

You are brave.

You are creative.

You are wise.

You are empaths.

You are private.

You are each different.

You are complicated.

You are connected.

You are givers.

You are a community.

You are family.

You are friends.

You love life and want to live it to the fullest.

You seek knowledge and understanding.

You appreciate empathy.

You have great senses of humor.

You have hope.

You are real.

You are much, much more than your illness.

Everyday you show me how valuable we all are. Everyday you impress me. Everyday you overwhelm me. And everyday you remind me that we are so much more than our illness. But just in case you do not always remember this yourself, look back over the list and take in all that you are. Pick out the ones that apply most to you, and really think about them. Focus on them for a few minutes. Say them over and over again in you mind. Be proud and say them out loud. Spend some time focusing on all that you are, not on all that you can no longer be. Your illness may be invisible, but you are not.