Comments for Fibromyalgia Haven http://www.fibrohaven.com Learning to Balance Chronic Health with a Chronic Love of Life Fri, 12 Mar 2010 04:12:31 +0000 http://wordpress.org/?v=2.9.2 hourly 1 Comment on Get Fibromyalgia AWARE. by fibrohaven http://www.fibrohaven.com/2010/03/11/get-fibromyalgia-aware/comment-page-1/#comment-1250 fibrohaven Fri, 12 Mar 2010 04:12:31 +0000 http://www.fibrohaven.com/?p=1754#comment-1250 Thanks Lynne. I am always happy to support the efforts of the NFA. I have firsthand knowledge of how great you and your staff are. You have much to be proud of. Thanks for all YOU do! Thanks Lynne. I am always happy to support the efforts of the NFA. I have firsthand knowledge of how great you and your staff are. You have much to be proud of. Thanks for all YOU do!

]]> Comment on Fibromyalgia Food Mood Diary by fibrohaven http://www.fibrohaven.com/2009/03/11/fibromyalgia-food-mood-diary/comment-page-1/#comment-1249 fibrohaven Fri, 12 Mar 2010 03:56:16 +0000 http://fibrohaven.wordpress.com/?p=837#comment-1249 Thanks Kelly! How awesome that you are having great success going gluten free too. I checked out your new blog dedicated to your efforts. Nice job! It will be a great resource for others with FM who chose to go gluten free. Thanks Kelly! How awesome that you are having great success going gluten free too. I checked out your new blog dedicated to your efforts. Nice job! It will be a great resource for others with FM who chose to go gluten free.

]]> Comment on Fibromyalgia Food Mood Diary by Kelly http://www.fibrohaven.com/2009/03/11/fibromyalgia-food-mood-diary/comment-page-1/#comment-1248 Kelly Fri, 12 Mar 2010 02:07:16 +0000 http://fibrohaven.wordpress.com/?p=837#comment-1248 Dannette, Thank you so much for your blog. You have inspired me to go gluten-free with great success. Kelly :) Dannette,
Thank you so much for your blog. You have inspired me to go gluten-free with great success.
Kelly :)

]]> Comment on Get Fibromyalgia AWARE. by Lynne Matallana http://www.fibrohaven.com/2010/03/11/get-fibromyalgia-aware/comment-page-1/#comment-1247 Lynne Matallana Fri, 12 Mar 2010 00:49:30 +0000 http://www.fibrohaven.com/?p=1754#comment-1247 Thank you so much for sharing information about the NFA and our new FREE online version of Fibromyalgia AWARE magazine! I am so proud of the staff and volunteers here at the NFA---they work so hard---and it means a lot to have their efforts supported by others in the FM community! Thank you for all you do to help people with FM!!! Thank you so much for sharing information about the NFA and our new FREE online version of Fibromyalgia AWARE magazine! I am so proud of the staff and volunteers here at the NFA—they work so hard—and it means a lot to have their efforts supported by others in the FM community! Thank you for all you do to help people with FM!!!

]]> Comment on Focusing on Fibromyalgia with the NFA by Get Fibromyalgia AWARE. | Fibromyalgia Haven http://www.fibrohaven.com/2009/09/10/focusing-on-fibromyalgia-with-the-nfa/comment-page-1/#comment-1246 Get Fibromyalgia AWARE. | Fibromyalgia Haven Thu, 11 Mar 2010 22:51:33 +0000 http://fibrohaven.wordpress.com/?p=1481#comment-1246 [...] The NFA is focused on creating programs dedicated to spreading Fibromyalgia Awareness, like the Fibro Focus events that took place last year, which my support group was fortunate to participate [...] [...] The NFA is focused on creating programs dedicated to spreading Fibromyalgia Awareness, like the Fibro Focus events that took place last year, which my support group was fortunate to participate [...]

]]> Comment on I Have Changed. I am Different. I am Improved. by fibrohaven http://www.fibrohaven.com/2010/03/05/i-have-changed-i-am-different-i-am-improved/comment-page-1/#comment-1245 fibrohaven Wed, 10 Mar 2010 04:07:28 +0000 http://www.fibrohaven.com/?p=1748#comment-1245 Oh Dena, your comment really touches me. I understand completely how you are feeling. It took me over 12 years of grieving for my old self before I attained of level of acceptance and it was only then that I began progressing. It really is a grieving process you are going through. But you are already aware of your need to accept where you are now so you can move forward. Just know that you are not accepting that this will be your forever reality. It is only your current reality. Through your efforts, and unfortunately with a lot of trial and error, you can improve. You may never be the same person you were two years ago, but that doesn't mean you can't be equally fabulous. I wish I could share the magic recipe of how I got here, but I can't. The only thing I can share is encouragement and hope. Let your frustration fuel you. You are worth the effort it will take. Don't accept that you have to be miserable. I wish you all the best! [WORDPRESS HASHCASH] The poster sent us '0 which is not a hashcash value. Oh Dena, your comment really touches me. I understand completely how you are feeling. It took me over 12 years of grieving for my old self before I attained of level of acceptance and it was only then that I began progressing. It really is a grieving process you are going through. But you are already aware of your need to accept where you are now so you can move forward. Just know that you are not accepting that this will be your forever reality. It is only your current reality. Through your efforts, and unfortunately with a lot of trial and error, you can improve. You may never be the same person you were two years ago, but that doesn’t mean you can’t be equally fabulous.

I wish I could share the magic recipe of how I got here, but I can’t. The only thing I can share is encouragement and hope. Let your frustration fuel you. You are worth the effort it will take. Don’t accept that you have to be miserable. I wish you all the best!

[WORDPRESS HASHCASH] The poster sent us ‘0 which is not a hashcash value.

]]> Comment on I Have Changed. I am Different. I am Improved. by Dena http://www.fibrohaven.com/2010/03/05/i-have-changed-i-am-different-i-am-improved/comment-page-1/#comment-1244 Dena Mon, 08 Mar 2010 22:23:45 +0000 http://www.fibrohaven.com/?p=1748#comment-1244 I am glad I found your blog. I am so frustrated with my treatment. I tried the hollistic route for about 6 months with no relief. Then I went the traditional route and have had some reactions to different medications. I'm tired of the ER visits and I'm tired of getting shuffled from one doctor to the next. I have no idea what to do. What I do know is that when I look at a picture of myself from two years ago, I cry. I see that lady with bright eyes and a big smile and I miss her. I miss her sense of humor and her bubbly happy disposition and her active lifestyle. How to get past missing her and accepting who I am now is my biggest challenge. I am glad I found your blog. I am so frustrated with my treatment. I tried the hollistic route for about 6 months with no relief. Then I went the traditional route and have had some reactions to different medications. I’m tired of the ER visits and I’m tired of getting shuffled from one doctor to the next. I have no idea what to do.

What I do know is that when I look at a picture of myself from two years ago, I cry. I see that lady with bright eyes and a big smile and I miss her. I miss her sense of humor and her bubbly happy disposition and her active lifestyle. How to get past missing her and accepting who I am now is my biggest challenge.

]]> Comment on I Have Changed. I am Different. I am Improved. by fibrohaven http://www.fibrohaven.com/2010/03/05/i-have-changed-i-am-different-i-am-improved/comment-page-1/#comment-1243 fibrohaven Mon, 08 Mar 2010 17:18:18 +0000 http://www.fibrohaven.com/?p=1748#comment-1243 If only there were a magic pill. I totally understand Annie. Unfortunately there is not, and there never will be. Sorry to confuse you more, but please don't get discouraged. The very fact that you read this post means you are online doing research, trying to figure out what is best for you. That is awesome! Keep it up. Take baby steps, and absorb what suits you and discard the rest. The fact is, we are all our own best health advocates. There is not a doctor on this planet who knows exactly what is best for us. We have to determine that ourselves - through trial and error, and by listening closely to our bodies and trusting our own instincts. And hopefully with the guidance of knowledgeable and trusted health practitioners. Each symptom you feel is a message from your body. The trick is acknowledging it and learning what it means. I wish I had an easier answer for you Annie. I understand how you feel, because I was there not that long ago. But here you are - trying to figure out how to treat your FM. My hope for you is that one day soon you will be able to say - "I have changed. I am different. I am improved." [WORDPRESS HASHCASH] The poster sent us '0 which is not a hashcash value. If only there were a magic pill. I totally understand Annie. Unfortunately there is not, and there never will be. Sorry to confuse you more, but please don’t get discouraged. The very fact that you read this post means you are online doing research, trying to figure out what is best for you. That is awesome! Keep it up.

Take baby steps, and absorb what suits you and discard the rest. The fact is, we are all our own best health advocates. There is not a doctor on this planet who knows exactly what is best for us. We have to determine that ourselves – through trial and error, and by listening closely to our bodies and trusting our own instincts. And hopefully with the guidance of knowledgeable and trusted health practitioners.

Each symptom you feel is a message from your body. The trick is acknowledging it and learning what it means. I wish I had an easier answer for you Annie. I understand how you feel, because I was there not that long ago. But here you are – trying to figure out how to treat your FM. My hope for you is that one day soon you will be able to say – “I have changed. I am different. I am improved.”

[WORDPRESS HASHCASH] The poster sent us ‘0 which is not a hashcash value.

]]> Comment on I Have Changed. I am Different. I am Improved. by fibrohaven http://www.fibrohaven.com/2010/03/05/i-have-changed-i-am-different-i-am-improved/comment-page-1/#comment-1242 fibrohaven Mon, 08 Mar 2010 17:05:45 +0000 http://www.fibrohaven.com/?p=1748#comment-1242 Awesome Donna! I hope this doctor turns out to be a good fit for you. More and more western medical professionals are incorporating eastern/holistic philosophies into their practice. It really is the way to go. Some people do well on Cymbalta and Lyrica, but if you look closely at the research, the amount of people they actually help is minimal, and the percentage those people improve is less than 50%. So you really have to weigh is it worth all the side effects. I am glad you have found someone to guide you! My best to you. [WORDPRESS HASHCASH] The poster sent us '0 which is not a hashcash value. Awesome Donna! I hope this doctor turns out to be a good fit for you. More and more western medical professionals are incorporating eastern/holistic philosophies into their practice. It really is the way to go. Some people do well on Cymbalta and Lyrica, but if you look closely at the research, the amount of people they actually help is minimal, and the percentage those people improve is less than 50%. So you really have to weigh is it worth all the side effects. I am glad you have found someone to guide you! My best to you.

[WORDPRESS HASHCASH] The poster sent us ‘0 which is not a hashcash value.

]]> Comment on I Have Changed. I am Different. I am Improved. by fibrohaven http://www.fibrohaven.com/2010/03/05/i-have-changed-i-am-different-i-am-improved/comment-page-1/#comment-1241 fibrohaven Mon, 08 Mar 2010 17:01:09 +0000 http://www.fibrohaven.com/?p=1748#comment-1241 Shonna I applaud you for taking such a brave step. I can't imagine what the withdrawal period was like for you. Bravo for sticking it out. Personally I take very few supplements, but there are some I may be adding to my regiment. Daily I take a good multivitamin, magnesium, and fish oil. Since taking these three regularly, my sleep has really improved, and in turn so has my pain, energy, and cognition. From all accounts, Vitamin D is a must for people with FM, and I do plan to add it to what I take. Beyond that I recommend you do a lot of research. Dr Andrew Weil has a lot of great articles on supplementation. Also, I have found a lot of useful information on womentowomen.com. Also I recommend finding a good holistic doctor. Be careful though. Some of them are in the business of selling supplements. I found a great holistic chiropractor who started me on my holistic journey. Best of Luck to You! [WORDPRESS HASHCASH] The poster sent us '0 which is not a hashcash value. Shonna I applaud you for taking such a brave step. I can’t imagine what the withdrawal period was like for you. Bravo for sticking it out. Personally I take very few supplements, but there are some I may be adding to my regiment. Daily I take a good multivitamin, magnesium, and fish oil. Since taking these three regularly, my sleep has really improved, and in turn so has my pain, energy, and cognition.

From all accounts, Vitamin D is a must for people with FM, and I do plan to add it to what I take. Beyond that I recommend you do a lot of research. Dr Andrew Weil has a lot of great articles on supplementation. Also, I have found a lot of useful information on womentowomen.com. Also I recommend finding a good holistic doctor. Be careful though. Some of them are in the business of selling supplements. I found a great holistic chiropractor who started me on my holistic journey.

Best of Luck to You!

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