Comments for Fibromyalgia Haven

Comment on Take Care of Yourself by Sheri

Sheri — Thu, 09 Feb 2012 08:25:03 +0000

I have been diagnosed for almost 8 years now…STILL fighting Social Security and Trisha I am with you it is hard to find that balance… Yep I am either just beat or I have some energy so I try to get everything done the day I feel good so I can stay ahead of the game…. Frustrating…

Comment on Community is Everything by symptoms fibromyalgia

symptoms fibromyalgia — Wed, 08 Feb 2012 20:43:28 +0000

fibromyalgia treatments

Comment on 5 Reasons Fibromyalgia Awareness Campaigns are a Good Thing by Bj

Bj — Thu, 02 Feb 2012 17:12:53 +0000

Looking forward to see what you have to share about this awful disease.

Comment on Take Care of Yourself by Trisha

Trisha — Thu, 02 Feb 2012 02:33:23 +0000

I’m pretty sure my angels are always trying to tell me to pace myself and balance productivity with rest. (I know my body is telling me that!) But I find it so hard to do. I’m either going or I can’t get myself going at all. After almost 10 years with this illness, I’m still trying to find the balance. It’s very inspiring that you are listening to those messages. Maybe I’ll get there some day soon!

Comment on It’s a Gluten Thing! by Mariam

Mariam — Tue, 31 Jan 2012 20:31:39 +0000

Very informative article post.Much thanks again. Much obliged.

Comment on The Comfort Found in Asking for Support by FibroHaven

FibroHaven — Sat, 28 Jan 2012 05:44:31 +0000

Programmed is right! We are working with so many conditioned behaviors that actually work against us. Exactly why being kind and loving to ourselves is so important. It does take real courage and strength of character to ask for support. Thank you for your comment and especially for your enthusiasm. It is appreciated!

Comment on The Comfort Found in Asking for Support by FibroHaven

FibroHaven — Sat, 28 Jan 2012 05:40:30 +0000

It is common to avoid or “skim over” something that triggers us. The fact that you are aware of your tendency to do so might mean you are ready to make a shift and start allowing yourself to ask for and receive support. Just something to consider… Please do not use any of your tendencies as a reason to be judgmental of yourself. You are truly doing the best you can in each possible moment with what you have available to you at the time. Always remember that and be kind to yourself. Change is a process, awareness is a good first step.

Comment on The Comfort Found in Asking for Support by Green Girl Mel

Green Girl Mel — Wed, 25 Jan 2012 04:26:10 +0000

Hi there,
I love your post and especially how you have related your students at yoga to the struggle we go through asking for support. It is such a simple thing but for some reason we are programmed to believe that asking for support means we are somehow inferior. What a joke! It is those things that are hard to do that show real courage and strength of character. Thanks for your blog post, I love it.
Mel

Comment on The Comfort Found in Asking for Support by Trisha

Trisha — Tue, 24 Jan 2012 18:26:15 +0000

This is something I need to work on. I don’t allow myself to ask for support and whenever I read a book or article about the importance of a support system, I just skim over that part like it couldn’t possibly apply to me. I guess my response to pain and difficulty is to isolate myself. Probably not the healthiest approach!

Comment on The Many Triggers of Fibromyalgia by Bertynurse

Bertynurse — Sat, 21 Jan 2012 20:53:29 +0000

I read your story and it was very inspirational. My husband, whom is a surgeon, says that fibromyalgia is a false diagnosis for doctors that can’t figure out what the heck is wrong with you. I can’t disagree any more!! I have it and it was due to a simple addition that I added to my body for Christmas. It was supposed to be the “breast Christmas ever”, if you get my point. It was as simple as that and it went wrong. I had a post operative infection, had an allergic reaction to the antibiotic I was on for 3 weeks, went into liver failure and almost died. I spent 3 weeks in the hospital and 3 months out of work. They gave me steroids to combat the liver failure and anaphylaxis and I ended up with steroid induced cushions syndrome and went from 120 lbs to 180 lbs in a matter of 5 weeks. And then the pain started!!! Oh my God, I didn’t know what hit me and it was out of the blue. I went to a pain management doctor and unlike yours, they completely over medicated me and that put me back in the hospital for another week and left me feeling a little crazy and untrusting. During the 3 months home and with the help of a holistic doctor I was referred to and a medication called Savella, I went from barely able to walk with a walker to slowly walking without it and eventually running again, as I too was very active before my surgery and this mess they call fibromyalgia. I completely understand the whole temperature thing, and living in Florida with the humidity and a lot of different pressure systems with storms, I don’t need to watch the weather channel, my body tells me when the storms are coming and when it is going to get cold. I am a nurse and I woke up today after a very busy, stressful week, in terrible pain and was on the computer and stumbled across this blog and found it very motivational to get myself up and out of the house to get moving and not feel sorry for myself, so thank you so much for validating our disease process and helping me to feel like I am not so crazy and it is not all in my head as my husband thinks it is. It has been 3 years since my surgery and for the most part the pain is controlled, but for some reason this week is pretty darn horrendous.