Comments on: Change, Adaptation, and the Amazing Race

By: Cognitive Coping Skills for the Treatment of Fibromyalgia | Fibromyalgia Haven

Sat, 31 Oct 2009 21:04:40 +0000

[...] time of transition in my life has been trying to say the least. An emotional roller coaster would be a better way to [...]

By: Fibrochondriac

Fibrochondriac — Sat, 10 Oct 2009 19:06:42 +0000

So weird. I know the difference between the two, I looked at the link, it was showing up for me yesterday but now poof! Not on my profile (remember me trying to get the networked blogs on my profile? What a pain)…now they’re all gone. Shows how dependent we are to the whims of the Powers That Be…

By: fibrohaven

fibrohaven — Sat, 10 Oct 2009 01:48:11 +0000

Thank you Lisa. I am glad to have helped you and will continue to do so. I am so happy you started a group in Portland. Who knows, maybe once things settle down around here I will start over on facebook. It really was a great tool.

The journey continues. Glad to be on it with you! My Best.

By: fibrohaven

fibrohaven — Sat, 10 Oct 2009 01:45:53 +0000

Kathy I still have a personal facebook profile where I link to my blog whenever I write a new post. That is how you saw this link. It is the FibroHaven page on facebook that has disappeared. I know it is confusing, but trust me, it is gone.

By: Fibrochondriac

Fibrochondriac — Sat, 10 Oct 2009 00:56:22 +0000

Which is odd, because I was just on FB and read this…oh go figure. Customer service anywhere just blows, seems worse lately.

Go get ‘em tiger, you gots lots to contribute. I wish you the best of luck!

By: Lisa

Lisa — Thu, 08 Oct 2009 04:42:00 +0000

I am so glad I found your site before it disappeared off of facebook. You have been a great wealth of information and ecouragement in helping me to start a support group here in Portland. I will be forwarding people to your blog, because it has so many great articles, like this one. Yes, we will all be OK…because of fibro, I have become great at having to adapt to change and the journey contines for all of us. I do not believe “things just happen”…there is always reason, even if we can’t understand what that reason may be at the time. I am excited for you, as I know this time of change will lead you to further growth and wisdom, which hopefully, you will share with the rest of us!!!

By: fibrohaven

fibrohaven — Thu, 08 Oct 2009 02:22:24 +0000

Anna you are so dear! It is a good thing we weren’t together when I got the news. We would have been a mess! Thank you so much for all your kindness and support. I am very lucky to have connected with people like you, and I am not going anywhere! Your prayers are very much appreciated.

By: fibrohaven

fibrohaven — Thu, 08 Oct 2009 02:19:22 +0000

Just leaving a comment is all I needed from you Kellie. It is the connections I have made with people like you that will keep me committed to this blog, no matter what life brings. I appreciate you so very much!

By: fibrohaven

fibrohaven — Thu, 08 Oct 2009 02:14:11 +0000

Andy it means a lot to me that you took the time to comment on this post in particular. Your recent loss of your wife was on my mind and help me put things in perspective over the weekend. My husband and I are blessed to have each other to navigate through this.

I can’t tell you how much I appreciate your compliments on my writing as well. Turns out I may have to put that skill to good use! Thanks for the reinforcement.

By: Anna Murphy

Anna Murphy — Thu, 08 Oct 2009 01:49:40 +0000

All I could think of was, “Oh no, oh no.” That you and your husband make a wonderful team is so inspiring, though, that my shock is settling. I am going to look forward even more to your blog, knowing how much you are sacrificing to keep the blog going. Good luck to both of you. You are in my prayers.