Fibromyalgia Wellness Project is Looking for Participants
In June I shared with you the announcement of The Fibromyalgia Wellness Project, a study to see if Fibromyalgia sufferers can easily discover simple modifications in their patterns of daily living to markedly reduced their symptoms. It was delayed due to scheduling and resource issues, but on Friday I received the announcement that it is up and looking for participants.
Dear Friends,
I am pleased to announce that the Fibromyalgia Wellness Project is now up and running and ready to receive participants. This is a research project sponsored by the National Institute of Arthritis, Musculoskeletal and Skin diseases, National Institutes of Health. Its purpose is to evaluate a new web-based self-management program that aims to help people with FM discover ways to reduce symptoms and improve health through a completely personalized self-monitoring approach that takes no more than 5 to 10 minutes per day.
In using this program you will create your own personal database of symptom patterns and self-management strategies that will be analyzed by the project’s proprietary analytical methods. After sufficient use (depending on how frequently you use it–we recommend at least four times per week), the program will provide you with personalized feedback about strategies that lead to reduced symptoms for you. The feedback you receive will be derived from your own personal inputs over time, which is why your on-going participation over several weeks is needed. This allows you to experiment with different strategies and lifestyle changes (e.g., bed times, meal times, self-help practices, exercise, stresses, herbs, supplements, medications, and more) to find out what works best for you.
Please go to http://www.fmwellness.org/index.htm to learn about the project and sign up.
We will be continuing to upgrade and refine the site in the coming months. I hope you find the project beneficial, and welcome your participation.
Best regards,
William Collinge, PhD, MPH
Principal Investigator
The Fibromyalgia Wellness Project
http:www.fmwellness.org
Is it phase II of a study that was looking for participants a few months ago and was mentioned on fibrohaven? I’d e-mailed the person then but not got any response. Maybe I’ll try again for phase II. Also is it purely for medical research or to be used by a commercial medical lab?
I signed up! This is a good time to begin this project because I just started a new PT program and am actively doing something positive for my spiritual self. Ugh 2 new things at once…it is hard enough to do one thing at a time. But I think this project will keep me motivated.
Thanks for posting.
I signed up too!
I signed up, but am having a hard time finding a good time to record my SMART log.
Anyone have suggestions?
Hi Beth, were you already accepted?
Never mind Beth! I am new to this, I assumed they were going to send out emails to whoever was accepted. After seeing your post, I went back, and sure enough, I can log in and do my monthly report and smart log too. yeah!
They originally announced that they were looking for participants for both phases, but they were delayed in getting the program up and running. That is probably why you did not hear back from anyone. Now they are ready and are looking for participants for both phases again.
As far as the purpose for the research, you may want to contact Collinge and Associates as they are the ones conducting the study: http://www.collinge.org/.