Comments on: Let’s Not Call it Exercise, Let’s Call it Mindful Movement

By: 5 Reasons Fibromyalgia Awareness Campaigns are a Good Thing | Fibromyalgia Haven

Mon, 02 May 2011 20:19:20 +0000

[...] of the lifestyle changes we can make that will help improve our quality of life. We understand that mindful movement is important for our bodies, with the key word being mindful – mindful of our own unique [...]

By: sue owen

sue owen — Fri, 03 Dec 2010 20:32:18 +0000

A number of years ago, when I was finally diagnosed with fibro/cfs-I was about to travel from cleveland OH to sarassota fl with a friend who had cfs. I had read some traveling tips that suggested that you should take a cane with you when you travel. Not only does it give you something to lean on if you need it, but when the airport people see it you don’t even have to ask for a wheel chair—they just bring you one. At first my friend was embarresed for me to take the cane, and when she saw the line at the airport, she grabbed my arm and said “get that cane of yours out!!!” These are diseases where you don’t necessarily look sick. I do belive that you have to strengthen your core muscles at the minimun. Just keep trying till you find out what works. I walk about 1-2 hrs a day and have started using a rebounder, I love it. It has the additional benefit of helping the lymph glands to get to functioning correctly! All the best to you, great site. sue owen

By: Kathy

Kathy — Fri, 03 Dec 2010 19:18:05 +0000

I’ve considered asking for a wheelchair a couple of times when we travel. There’s one airport (I think it’s Dallas, but I could be wrong) where our connection is ALWAYS at the opposite end of this huge airport. But it isn’t pride that stops me. It’s more I’m scared to bother anybody and I’m afraid of the looks I’d get from the people that think I should save the wheelchair for “someone who really needs it”. That always sends chills through me. Kinda like using my handicapped parking permit…

By: Kathy

Kathy — Fri, 03 Dec 2010 19:09:44 +0000

I really think, no matter what anybody says, Chronic Fatigue & Fibro are NOT the same thing. People with CFS/ME have systems that go completely haywire if they exercise. But for Fibro, I am becoming more and more convinced that moving our bodies is a good thing for us. Just from reading this quite persuasive article (and watching Ms. FibroHaven over the past year) and all the comments…finding a way that you can move your body that will help you is one of the best things people with fibromyalgia can do.

By: Tweets that mention Let’s Not Call it Exercise, Let’s Call it Mindful Movement | Fibromyalgia Haven -- Topsy.com

Fri, 03 Dec 2010 17:50:58 +0000

[...] This post was mentioned on Twitter by Dannette Rusnak, CIRPD. CIRPD said: I really love @FibroHaven term "mindful movement" instead of exercise. So important for #fibro and #chronicpain. http://bit.ly/eMpYyL [...]

By: Tam

Tam — Sat, 14 Aug 2010 06:50:59 +0000

it’s amazing how differently people are effected by fibro and cfs. I spent time with a friend with fibro recently, and found that where i can walk for a fair way, but cannot ride a bike (after ten years of riding my bike every day), he can ride a bike but not walk! So for us both to get from my house to the shops, we would say goodbye at my house, then he would ride my bike and i would walk there! I also know a teenage girl with cfs who must exercise a lot to feel good, but often exercises too much and crashes.. i suspect those of us who benefit from lots of sweating and puffing have more of a problem with our eliminatory systems, while those who need very gentle stretching have more of a problem with having very low basic energy levels, and so simply can’t cope with expending that much energy. I’ve taken two different yoga classes recently, and found that while i was in the class i felt quite good, but my old attitude of pushing myself too hard is still very much there, and both times couldn’t walk for a couple of days afterwards. i will look for a class with “gently” in the title, and hope it helps.

By: Find the Space Between Pleasure and Pain, and Rest There | Fibromyalgia Haven

Thu, 22 Jul 2010 18:12:35 +0000

[...] This is just one of the reasons why yoga – with the right instructor – is an excellent mindful movement for fibromyalgia. But I [...]

By: Book Review: Yoga for Fibromyalgia | Fibromyalgia Haven

Book Review: Yoga for Fibromyalgia | Fibromyalgia Haven — Tue, 16 Mar 2010 13:50:51 +0000

[...] may have mentioned it once or twice (like here, here, and here) – I am a huge proponent of yoga. If I had to list the things that have improved my [...]

By: Tmake rish Hykes

Tmake rish Hykes — Tue, 16 Feb 2010 16:48:11 +0000

Sorry… my name is Trish!!!

By: Tmake rish Hykes

Tmake rish Hykes — Tue, 16 Feb 2010 16:47:34 +0000

I just wanted to chime in here. I tried getting on the treadmill or taking walks and it really was only making me hurt more. I went back to spinning which was my addiction eight months ago. I was afraid at first, and really not sure if this was going to set me back or make me better. I was amazed at how little pain I had after my first spin class, since I first got Fibro. It seems to be the most gentle exercise that I can find for my body. My instructors are aware that I have Fibro and Neurocardiogenic Syncope and they never push me. I find myself smiling through the whole class. I’m really proud of myself for taking the risk and putting myself in the saddle again. I hope that everyone will try to find an exercise that is gentle for them and gets the rewards that come with it. If you tell yourself that you “can’t”, you never will be able to. Tell yourself that you “can” and you’d be surprised what benefits exercise will make for you and how your pain may decrease. Give it a try, it’s worth it!!
Trish