Comments on: Perspective & Priorities http://www.fibrohaven.com/2009/09/03/perspective-priorities/ Living a Life of Essence in Spite of Illness Thu, 09 Feb 2012 08:25:03 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: fibrohaven http://www.fibrohaven.com/2009/09/03/perspective-priorities/comment-page-1/#comment-882 fibrohaven Tue, 08 Sep 2009 23:25:04 +0000 http://fibrohaven.wordpress.com/?p=1468#comment-882 I don't know if it is related to your FM Barbara, but it can cause many of the same symptoms that FM does - pain, fatigue, fibro fog... You really should see your doctor about it if you can. I think we all have a tendency to blame all of our symptoms on FM and just deal with them, but sometimes they are unrelated. And sometimes they are more treatable than FM. Sorry you missed your lunch because of it. I think I am finally starting to turn the corner, thanks. I hope you are able to get some relief too. At least the weather is finally cooling down! I don’t know if it is related to your FM Barbara, but it can cause many of the same symptoms that FM does – pain, fatigue, fibro fog… You really should see your doctor about it if you can. I think we all have a tendency to blame all of our symptoms on FM and just deal with them, but sometimes they are unrelated. And sometimes they are more treatable than FM.

Sorry you missed your lunch because of it. I think I am finally starting to turn the corner, thanks. I hope you are able to get some relief too. At least the weather is finally cooling down!

]]> By: fibrohaven http://www.fibrohaven.com/2009/09/03/perspective-priorities/comment-page-1/#comment-881 fibrohaven Tue, 08 Sep 2009 23:18:01 +0000 http://fibrohaven.wordpress.com/?p=1468#comment-881 Kellie so many of us are struggling right now. What is it? It is like our flares are starting to synchronize! Guilt - there is that word again. Wouldn't we all benefit so much if we could just learn to not feel guilty. I am sorry you have been struggling. I know how committed you are to your job, and to doing a good job in whatever you are doing. It is a struggle to find balance. I wish I had some great wisdom for you to help break the cycle. I can only offer one word - priorities and like I said to Rhonda - you are a priority. Thanks for your support Kellie. You encourage me! Kellie so many of us are struggling right now. What is it? It is like our flares are starting to synchronize!

Guilt – there is that word again. Wouldn’t we all benefit so much if we could just learn to not feel guilty. I am sorry you have been struggling. I know how committed you are to your job, and to doing a good job in whatever you are doing. It is a struggle to find balance. I wish I had some great wisdom for you to help break the cycle. I can only offer one word – priorities and like I said to Rhonda – you are a priority.

Thanks for your support Kellie. You encourage me!

]]> By: fibrohaven http://www.fibrohaven.com/2009/09/03/perspective-priorities/comment-page-1/#comment-880 fibrohaven Tue, 08 Sep 2009 23:11:14 +0000 http://fibrohaven.wordpress.com/?p=1468#comment-880 Yeah, I really try to avoid whiny. It does me no good. This post came to me when I could not sleep so I got up and started writing. It felt good to share it. I really appreciate you comment. I write much less during a flare, but it is good to hear that you think I can still write well! Yeah, I really try to avoid whiny. It does me no good.

This post came to me when I could not sleep so I got up and started writing. It felt good to share it. I really appreciate you comment. I write much less during a flare, but it is good to hear that you think I can still write well!

]]> By: fibrohaven http://www.fibrohaven.com/2009/09/03/perspective-priorities/comment-page-1/#comment-879 fibrohaven Tue, 08 Sep 2009 23:07:43 +0000 http://fibrohaven.wordpress.com/?p=1468#comment-879 Rhonda I always feel humbled by you moms with chronic illness. I have so much reverence for what you do, and I imagine there is a whole level of guilt involved I cannot understand. But the fact remains that you do need to lay and the couch sometimes. By taking care of you, you can then take better care of them. You are a priority. Thanks for commenting on todays blog. It felt good to be so honest. Rhonda I always feel humbled by you moms with chronic illness. I have so much reverence for what you do, and I imagine there is a whole level of guilt involved I cannot understand. But the fact remains that you do need to lay and the couch sometimes. By taking care of you, you can then take better care of them. You are a priority.

Thanks for commenting on todays blog. It felt good to be so honest.

]]> By: fibrohaven http://www.fibrohaven.com/2009/09/03/perspective-priorities/comment-page-1/#comment-878 fibrohaven Tue, 08 Sep 2009 07:55:05 +0000 http://fibrohaven.wordpress.com/?p=1468#comment-878 Thank you so much Anna. It was not an easy decision, but the right one seldom is. I appreciate your support very much! Thank you so much Anna. It was not an easy decision, but the right one seldom is. I appreciate your support very much!

]]> By: fibrohaven http://www.fibrohaven.com/2009/09/03/perspective-priorities/comment-page-1/#comment-877 fibrohaven Tue, 08 Sep 2009 07:53:50 +0000 http://fibrohaven.wordpress.com/?p=1468#comment-877 I think guilt is what I struggle with the most, and the worst thing about guilt is that it is self-imposed. Don't we suffer enough without adding to it? It is so hard to find balance. I honor you for working on it so diligently and wish you well in your journey Amy. I think guilt is what I struggle with the most, and the worst thing about guilt is that it is self-imposed. Don’t we suffer enough without adding to it? It is so hard to find balance. I honor you for working on it so diligently and wish you well in your journey Amy.

]]> By: fibrohaven http://www.fibrohaven.com/2009/09/03/perspective-priorities/comment-page-1/#comment-876 fibrohaven Tue, 08 Sep 2009 07:51:00 +0000 http://fibrohaven.wordpress.com/?p=1468#comment-876 I know you understand Clarissa. That is why it is so comforting to share my pain and experiences here among my peers. I wish we did not have this in common, but since we do we may as well commiserate about it. Thanks for sharing. I know you understand Clarissa. That is why it is so comforting to share my pain and experiences here among my peers. I wish we did not have this in common, but since we do we may as well commiserate about it. Thanks for sharing.

]]> By: fibrohaven http://www.fibrohaven.com/2009/09/03/perspective-priorities/comment-page-1/#comment-869 fibrohaven Tue, 08 Sep 2009 07:48:32 +0000 http://fibrohaven.wordpress.com/?p=1468#comment-869 Me too! Respected is a good way to look at it, thank you. Me too! Respected is a good way to look at it, thank you.

]]> By: Pascale http://www.fibrohaven.com/2009/09/03/perspective-priorities/comment-page-1/#comment-875 Pascale Sun, 06 Sep 2009 22:02:51 +0000 http://fibrohaven.wordpress.com/?p=1468#comment-875 I'm new at blogging even though Dannette, I've enjoyed reading your Fibro Haven writings for a few months now. It's been a few years that I'm mostly in flare-up mode. I've had to scale back and prioritize my life and make some big sacrifices. I am a french native who has lived in the States over 20 years. I was quite active in our local French community which involved writing newsletters, organizing events, attending parties & functions often 45 minutes from here. I knew that with fibromyalgia/CFS, I only had so much time & energy to go around & I had to focus it on my young child, my family & friendships close by. I volunteered at my son's school for a few years but last year I had to stop even though I enjoyed it The guilt of not sticking to the commitments was stressing me. I asked a friend (who has a severe autoimmune disease) why I keep on planning family vacations that I often can not go to. Her answer: we need to keep hope. Hope is what keeps us going. Good day to all! Pascale I’m new at blogging even though Dannette, I’ve enjoyed reading your Fibro Haven writings for a few months now. It’s been a few years that I’m mostly in flare-up mode. I’ve had to scale back and prioritize my life and make some big sacrifices. I am a french native who has lived in the States over 20 years. I was quite active in our local French community which involved writing newsletters, organizing events, attending parties & functions often 45 minutes from here. I knew that with fibromyalgia/CFS, I only had so much time & energy to go around & I had to focus it on my young child, my family & friendships close by.
I volunteered at my son’s school for a few years but last year I had to stop even though I enjoyed it The guilt of not sticking to the commitments was stressing me.
I asked a friend (who has a severe autoimmune disease) why I keep on planning family vacations that I often can not go to. Her answer: we need to keep hope. Hope is what keeps us going.
Good day to all!
Pascale

]]> By: Barbara http://www.fibrohaven.com/2009/09/03/perspective-priorities/comment-page-1/#comment-874 Barbara Sun, 06 Sep 2009 05:19:28 +0000 http://fibrohaven.wordpress.com/?p=1468#comment-874 I can so relate to the commitments thing! Its so hard for me to make plans because you never know how you will feel. My friends don't bother inviting me anymore but I do have one weekly lunch commitment that I will not miss unless its absolutely unavoidable (i missed yesterday because I have a herniated disc/pinched nerve or something that has totally disabled me...do you think it could be fibro related?). I think you were very wise to choose not to keep writing for Ever day Health, although I am sure it was not easy. I hope you are feeling better and that this dumb hot weather ends soon! I can so relate to the commitments thing! Its so hard for me to make plans because you never know how you will feel. My friends don’t bother inviting me anymore but I do have one weekly lunch commitment that I will not miss unless its absolutely unavoidable (i missed yesterday because I have a herniated disc/pinched nerve or something that has totally disabled me…do you think it could be fibro related?).

I think you were very wise to choose not to keep writing for Ever day Health, although I am sure it was not easy. I hope you are feeling better and that this dumb hot weather ends soon!

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