Comments on: Fibromyalgia: The Great Momentum Equalizer

By: Setting Priorities…the hard way « The Fibrochondriac

Setting Priorities…the hard way « The Fibrochondriac — Thu, 06 Aug 2009 08:51:06 +0000

[...] just trying to be at one with the pain and just hoping it’ll let up sometime soon. Someone at Fibrohaven referred to the pain of fibro like that of childbirth…you go through hell and then [...]

By: fibrohaven

fibrohaven — Mon, 13 Jul 2009 05:41:17 +0000

Thanks for reaching out here Debbie. Please, please, please let go of any belief that you brought this on yourself. Guilt is such a damaging emotion. The best thing you can do from this moment forward is honor the reality of your condition, and start to slowly make the changes that will improve your life. You may never be as healthy as you once were, but there are many things you can do to make living with FM more bearable.

Start with loving yourself, and believing that you deserve to be happy and healthy. Because you do!

By: Debbie

Debbie — Mon, 13 Jul 2009 03:37:08 +0000

Hi, I was recently diag. with Fibromyalgia. It is such a relief to read the thoughts that are so identical to my own. At times I think I have simply slipped into insanity, because on the good days this seems impossible to believe. I keep thinking that I have brought this upon myself… Thank you each one of you for your posts. I will continue to stop by. Debbie/Oklahoma

By: fibrohaven

fibrohaven — Wed, 08 Jul 2009 05:33:34 +0000

Connie I am so thankful for your tears of joy and gratitude. Isn’t it comforting to know we are not alone? That is my purpose for this blog – to share my story in the hopes of making a difference. I am touched by your emotional response, and hope you come back and comment frequently.

By: fibrohaven

fibrohaven — Wed, 08 Jul 2009 05:30:17 +0000

I think we all have a tendency to over do it on our good days and ultimately we always pay the price. I hope you are feeling better Adee. I am finally, and it is hard to believe I was feeling that bad so short a time ago.

By: Connie

Connie — Wed, 08 Jul 2009 02:58:18 +0000

first time blogging, first glimpse at a shared experience of living with fibro Tears of joy and gratitude –I’m not alone with this fibro. I’ve learned so much already. Thank you from the bottom of my once lonely heart!

By: Adee

Adee — Sun, 05 Jul 2009 20:33:18 +0000

I really feel for you. Yesterday I had a good day and was so happy that I actually got some stuff done. Today I couldn’t get out of bed and it can be so frustrating! onwards and upwards …

By: fibrohaven

fibrohaven — Sat, 04 Jul 2009 06:32:55 +0000

Our brains and bodies are so kind to not have long term memory. Could you imagine if we never had the moments when we “forget” how awful it can get? I love the days when the pain seems far away!

By: fibrohaven

fibrohaven — Sat, 04 Jul 2009 06:30:38 +0000

Thanks Trisha. As you can tell by my blogging frequency, I have been taking it easy, and am actually starting feel pretty good.

“I never see it coming and I struggle so hard against it.” So true!

P.S. I loved your Summer Reading post. It made me want to take a photo of all the books on my night stand too!

By: Kathy

Kathy — Fri, 03 Jul 2009 23:56:32 +0000

Tiffany you nailed it. I remember I used to always think there was “no way I could have fibro” when I was having good days. And then I’d get taken out at the knees…or clotheslined…again. Now it just feels like a never ending battle to have a good day.