Comments on: I Am Feeling So Lucky and Supported! http://www.fibrohaven.com/2009/06/19/i-am-feeling-so-lucky-and-supported/ Learning to Balance Chronic Health with a Chronic Love of Life Wed, 10 Mar 2010 04:07:28 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: Focusing on Fibromyalgia with the NFA « Fibromyalgia Haven http://www.fibrohaven.com/2009/06/19/i-am-feeling-so-lucky-and-supported/comment-page-1/#comment-636 Focusing on Fibromyalgia with the NFA « Fibromyalgia Haven Thu, 10 Sep 2009 23:27:38 +0000 http://fibrohaven.wordpress.com/?p=1264#comment-636 [...] Focusing on Fibromyalgia with the NFA 2009 September 10 tags: community, Fibro Focus, Fibrohaven, fibromyalgia, National Fibromyalgia Association, neurology, research, support group by fibrohaven Last month I had the honor of hosting the first Fibro Focus event organized by the National Fibromyalgia Association and their sponsor Pfizer Inc. The event was open to the local North San Diego community, and was attended by more than 50 people, including members of FibroHaven support group. [...] [...] Focusing on Fibromyalgia with the NFA 2009 September 10 tags: community, Fibro Focus, Fibrohaven, fibromyalgia, National Fibromyalgia Association, neurology, research, support group by fibrohaven Last month I had the honor of hosting the first Fibro Focus event organized by the National Fibromyalgia Association and their sponsor Pfizer Inc. The event was open to the local North San Diego community, and was attended by more than 50 people, including members of FibroHaven support group. [...]

]]> By: cathy pollak http://www.fibrohaven.com/2009/06/19/i-am-feeling-so-lucky-and-supported/comment-page-1/#comment-635 cathy pollak Sat, 27 Jun 2009 20:43:04 +0000 http://fibrohaven.wordpress.com/?p=1264#comment-635 Dannette- I miss you my friend. This is such a blessing. You are an incredible lady. I am really happy for you and wish you much love, health, and happiness. You are doing great works!! love, cathy Dannette- I miss you my friend. This is such a blessing. You are an incredible lady. I am really happy for you and wish you much love, health, and happiness. You are doing great works!! love, cathy

]]> By: TheBigSis http://www.fibrohaven.com/2009/06/19/i-am-feeling-so-lucky-and-supported/comment-page-1/#comment-634 TheBigSis Thu, 25 Jun 2009 18:41:19 +0000 http://fibrohaven.wordpress.com/?p=1264#comment-634 Another proud moment for the BIG SIS....... I am so proud of you, I am blessed to call you not only my Best Friend but my Sister. I wouldn't change a thing..... except one thing........ I wish with all my heart I could just take all your pain away, make it disappear and never ever come back. I wish that for everyone with FM. It fills my heart with joy to read all the comments about your blog. I can see and feel all the hearts you have touched. You truly are an inspiration to all that know you. To know you is to love you. I like hearing other people call you Dani. It is an honor to have named my Daughter after you. The world is a better place because of people like you. Keep up the good work and getting the word out to others about FM. LOVE YOU Another proud moment for the BIG SIS……. I am so proud of you, I am blessed to call you not only my Best Friend but my Sister. I wouldn’t change a thing….. except one thing…….. I wish with all my heart I could just take all your pain away, make it disappear and never ever come back. I wish that for everyone with FM.

It fills my heart with joy to read all the comments about your blog. I can see and feel all the hearts you have touched. You truly are an inspiration to all that know you. To know you is to love you.

I like hearing other people call you Dani. It is an honor to have named my Daughter after you. The world is a better place because of people like you. Keep up the good work and getting the word out to others about FM.

LOVE YOU

]]> By: Kathy http://www.fibrohaven.com/2009/06/19/i-am-feeling-so-lucky-and-supported/comment-page-1/#comment-631 Kathy Tue, 23 Jun 2009 23:15:52 +0000 http://fibrohaven.wordpress.com/?p=1264#comment-631 Okay, Enquiring Minds Want to Know. Would you like to share what this fibro community looks like? Or is it still percolating? And I'd like to help... I'm never a leader always a follower and this sounds like a great idea to follow. I really wish my subscription to your blog would work. I signed up for it via email but I never get an email. I think I just figured out how to get it posted on Facebook. We'll see. And what in the heck is RSS and where do I go learn about it? I know it stands for "Really Simple" something but I haven't figured it out which shows how technologically savvy I am! And obviously any "helping out" isn't in that area... ...and I really like the nickname Dani. It kind of rolls off the tongue :) Okay to use it? Glad you got validated. That is an awesome feeling! Okay, Enquiring Minds Want to Know. Would you like to share what this fibro community looks like? Or is it still percolating? And I’d like to help… I’m never a leader always a follower and this sounds like a great idea to follow.

I really wish my subscription to your blog would work. I signed up for it via email but I never get an email. I think I just figured out how to get it posted on Facebook. We’ll see. And what in the heck is RSS and where do I go learn about it? I know it stands for “Really Simple” something but I haven’t figured it out which shows how technologically savvy I am! And obviously any “helping out” isn’t in that area…

…and I really like the nickname Dani. It kind of rolls off the tongue :) Okay to use it?

Glad you got validated. That is an awesome feeling!

]]> By: kiwiwithfibro http://www.fibrohaven.com/2009/06/19/i-am-feeling-so-lucky-and-supported/comment-page-1/#comment-629 kiwiwithfibro Tue, 23 Jun 2009 21:27:08 +0000 http://fibrohaven.wordpress.com/?p=1264#comment-629 Hi Dani You're so lucky to have a great support group. I have fibromyalgia, too but I live in New Zealand where there's no support whatsoever for us fibros. Your blog is very inspiring!!! :-) If you like, come and check out mine on http://myfibromyalgiajournal.wordpress.com Hi Dani

You’re so lucky to have a great support group. I have fibromyalgia, too but I live in New Zealand where there’s no support whatsoever for us fibros. Your blog is very inspiring!!! :-) If you like, come and check out mine on

http://myfibromyalgiajournal.wordpress.com

]]> By: Jenn http://www.fibrohaven.com/2009/06/19/i-am-feeling-so-lucky-and-supported/comment-page-1/#comment-628 Jenn Tue, 23 Jun 2009 18:32:34 +0000 http://fibrohaven.wordpress.com/?p=1264#comment-628 Hi Dannette! I've been following your blog for some time now and I've been so inspired by you and other fibromites blogging about their life with fibro that I've started my own blog. I'd be honored if you'd stop by and check it out. Thanks and hope you're having a good day =) Jenn fibrologie.blogspot.com Hi Dannette! I’ve been following your blog for some time now and I’ve been so inspired by you and other fibromites blogging about their life with fibro that I’ve started my own blog. I’d be honored if you’d stop by and check it out. Thanks and hope you’re having a good day =)

Jenn
fibrologie.blogspot.com

]]> By: perpetualspiral http://www.fibrohaven.com/2009/06/19/i-am-feeling-so-lucky-and-supported/comment-page-1/#comment-630 perpetualspiral Sun, 21 Jun 2009 11:28:41 +0000 http://fibrohaven.wordpress.com/?p=1264#comment-630 Dannette you are so inspiring. You do such wonderful things, you have such a beautiful heart and soul. Just wanted to tell u that :D Dannette you are so inspiring. You do such wonderful things, you have such a beautiful heart and soul. Just wanted to tell u that :D

]]> By: fibrohaven http://www.fibrohaven.com/2009/06/19/i-am-feeling-so-lucky-and-supported/comment-page-/#comment-627 fibrohaven Sat, 20 Jun 2009 19:04:12 +0000 http://fibrohaven.wordpress.com/?p=1264#comment-627 First, I love that you called me Dani! That is what my sis calls me, and she named my niece Dani (Danielle) after me. So now it is like you are totally part of the family! "I find support is so important to have, particular from others who “get it” and deal with the same types of issues." What you said there - that is my driving force. Support! I know you are struggling, and I respect so much the energy you share with everyone all day on twitter. You know we signed up on twitter roughly the same time. Take a look at how many tweets you have, and then look at mine. You are remarkable. I brought up twitter to my group at the meeting and recommended that they all join. It really is a great way to build a community of support. The compassion and encouragement I read on there everyday really fuels me. If you ever do decide to start your own support group, please let me help you. I really think that should be a big part of my foundation, mentoring those interested in starting their own group. It is a labor of love. You are certainly made of the stuff it takes to be a great and caring leader, as long as it is not at the expense of your health. The first and most important step in all of this, is taking care of YOU FIRST. Like I said the other day. I have learned to be selfish when I need to, take care of and nurture myself. It makes me a better person and a better leader. Take care of you Amy! First, I love that you called me Dani! That is what my sis calls me, and she named my niece Dani (Danielle) after me. So now it is like you are totally part of the family!

“I find support is so important to have, particular from others who “get it” and deal with the same types of issues.”

What you said there – that is my driving force. Support!

I know you are struggling, and I respect so much the energy you share with everyone all day on twitter. You know we signed up on twitter roughly the same time. Take a look at how many tweets you have, and then look at mine. You are remarkable.

I brought up twitter to my group at the meeting and recommended that they all join. It really is a great way to build a community of support. The compassion and encouragement I read on there everyday really fuels me.

If you ever do decide to start your own support group, please let me help you. I really think that should be a big part of my foundation, mentoring those interested in starting their own group. It is a labor of love. You are certainly made of the stuff it takes to be a great and caring leader, as long as it is not at the expense of your health.

The first and most important step in all of this, is taking care of YOU FIRST. Like I said the other day. I have learned to be selfish when I need to, take care of and nurture myself. It makes me a better person and a better leader.

Take care of you Amy!

]]> By: fibrohaven http://www.fibrohaven.com/2009/06/19/i-am-feeling-so-lucky-and-supported/comment-page-/#comment-626 fibrohaven Sat, 20 Jun 2009 18:44:13 +0000 http://fibrohaven.wordpress.com/?p=1264#comment-626 We missed you Clarissa, but I am happy that you put your health first and rested. So you will come to the next meeting, or the one after that. Whenever you are up for it - because you know the group and I will be there for you. I appreciate your friendship and support very much! We missed you Clarissa, but I am happy that you put your health first and rested. So you will come to the next meeting, or the one after that. Whenever you are up for it – because you know the group and I will be there for you. I appreciate your friendship and support very much!

]]> By: Amy Kiel http://www.fibrohaven.com/2009/06/19/i-am-feeling-so-lucky-and-supported/comment-page-1/#comment-632 Amy Kiel Sat, 20 Jun 2009 07:46:10 +0000 http://fibrohaven.wordpress.com/?p=1264#comment-632 Dani, I am so happy that I was directed to your blog tonight. I am feeling so many different emotions, but I feel a huge sense of gratitude that I know you . . . as a fellow fibormyalgia "sufferer" (for lack of a better word) I find support is so important to have, particular from others who "get it" and deal with the same types of issues. I do not have that in my life, in a physical sense. I do have it on-line but I think to have that community in the "real world" would be great. I have been struggling, as you know, going through a tough time on many levels, but particularly due to a flare that has come up and brought me down. What a joy it is to know you and some of the other positive and supportive people we have the opportunity to know through twitter. I think I will look further into finding a support group in my area, and if there isn't one, research how to make that happen. Thanks for the inspiration and your kindness. You are a beautiful person! Hugs, Amy Dani,
I am so happy that I was directed to your blog tonight. I am feeling so many different emotions, but I feel a huge sense of gratitude that I know you . . . as a fellow fibormyalgia “sufferer” (for lack of a better word) I find support is so important to have, particular from others who “get it” and deal with the same types of issues. I do not have that in my life, in a physical sense. I do have it on-line but I think to have that community in the “real world” would be great. I have been struggling, as you know, going through a tough time on many levels, but particularly due to a flare that has come up and brought me down. What a joy it is to know you and some of the other positive and supportive people we have the opportunity to know through twitter. I think I will look further into finding a support group in my area, and if there isn’t one, research how to make that happen.
Thanks for the inspiration and your kindness. You are a beautiful person!
Hugs,
Amy

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