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	<title>Comments on: Fibromyalgia Newsletters are a Great Information Resource</title>
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	<link>http://www.fibrohaven.com/2009/06/17/fibromyalgia-newsletters-are-a-great-information-resource/</link>
	<description>Living a Life of Essence in Spite of Illness</description>
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		<title>By: Frank Cook</title>
		<link>http://www.fibrohaven.com/2009/06/17/fibromyalgia-newsletters-are-a-great-information-resource/comment-page-1/#comment-622</link>
		<dc:creator>Frank Cook</dc:creator>
		<pubDate>Mon, 22 Jun 2009 19:09:47 +0000</pubDate>
		<guid isPermaLink="false">http://fibrohaven.wordpress.com/?p=1259#comment-622</guid>
		<description>Dear Sir or Madam,

I am writing to you from the Pacific Northwest Foundation about a case study that may be of interest to your research into fibromyalgia.  While this was not a study undertaken by the Foundation, it was a case with which we have had access to in virtually every detail. This includes the chart notes (with the patient&#039;s approval) as well as the observations and insights of the patient&#039;s health care provider.

The case involves an adult female who had been disabled for eight years with diagnosed fibromyalgia. Within four months of treatment, she was able to backpack, regularly work a full day and have little or no pain.

As with all our studies, it is our hope to stimulate additional efforts to determine if these results were an aberration or have wider implications.  To this end, we wanted to make you aware of the cast study (which can be found online at http://pnf.org/html/fibromyalgia.html), in the hope that it might prove useful as a starting point for research within your organization.

Thanks and kind regards,

Frank Cook
Pacific Northwest Foundation</description>
		<content:encoded><![CDATA[<p>Dear Sir or Madam,</p>
<p>I am writing to you from the Pacific Northwest Foundation about a case study that may be of interest to your research into fibromyalgia.  While this was not a study undertaken by the Foundation, it was a case with which we have had access to in virtually every detail. This includes the chart notes (with the patient&#8217;s approval) as well as the observations and insights of the patient&#8217;s health care provider.</p>
<p>The case involves an adult female who had been disabled for eight years with diagnosed fibromyalgia. Within four months of treatment, she was able to backpack, regularly work a full day and have little or no pain.</p>
<p>As with all our studies, it is our hope to stimulate additional efforts to determine if these results were an aberration or have wider implications.  To this end, we wanted to make you aware of the cast study (which can be found online at <a href="http://pnf.org/html/fibromyalgia.html" rel="nofollow">http://pnf.org/html/fibromyalgia.html</a>), in the hope that it might prove useful as a starting point for research within your organization.</p>
<p>Thanks and kind regards,</p>
<p>Frank Cook<br />
Pacific Northwest Foundation</p>
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		<title>By: Anna Murphy</title>
		<link>http://www.fibrohaven.com/2009/06/17/fibromyalgia-newsletters-are-a-great-information-resource/comment-page-1/#comment-623</link>
		<dc:creator>Anna Murphy</dc:creator>
		<pubDate>Sun, 21 Jun 2009 20:16:21 +0000</pubDate>
		<guid isPermaLink="false">http://fibrohaven.wordpress.com/?p=1259#comment-623</guid>
		<description>I first ran across his works about 10 or more years ago. At that time it was &quot;extremely controversial&quot; (I can&#039;t spell this morning, words don&#039;t look right.) Anyway, what he was doing with the guafenesin was way out in left field. In some ways it made some sense: loosen up the fluid that held the fascia to the muscles and allow the muscles to move more freely.

The amt of med required was high and subsequent side effects were remarkable, but apparently decreased over time. I did not pursue the matter further as I felt it to be junk science. However, it is still around after all this time!

I did thoroughly enjoy the above article on Myth Busting and did read further into the newsletter. The other 2 articles IMO were &quot;my way or the highway&quot; in nature. But to each his own. I&#039;m kinda picky.

Your blog on the other hand leaves room for thought, gives relevant resources, and I love it. &lt;3 My fave.</description>
		<content:encoded><![CDATA[<p>I first ran across his works about 10 or more years ago. At that time it was &#8220;extremely controversial&#8221; (I can&#8217;t spell this morning, words don&#8217;t look right.) Anyway, what he was doing with the guafenesin was way out in left field. In some ways it made some sense: loosen up the fluid that held the fascia to the muscles and allow the muscles to move more freely.</p>
<p>The amt of med required was high and subsequent side effects were remarkable, but apparently decreased over time. I did not pursue the matter further as I felt it to be junk science. However, it is still around after all this time!</p>
<p>I did thoroughly enjoy the above article on Myth Busting and did read further into the newsletter. The other 2 articles IMO were &#8220;my way or the highway&#8221; in nature. But to each his own. I&#8217;m kinda picky.</p>
<p>Your blog on the other hand leaves room for thought, gives relevant resources, and I love it. &lt;3 My fave.</p>
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	<item>
		<title>By: fibrohaven</title>
		<link>http://www.fibrohaven.com/2009/06/17/fibromyalgia-newsletters-are-a-great-information-resource/comment-page-1/#comment-625</link>
		<dc:creator>fibrohaven</dc:creator>
		<pubDate>Thu, 18 Jun 2009 05:38:32 +0000</pubDate>
		<guid isPermaLink="false">http://fibrohaven.wordpress.com/?p=1259#comment-625</guid>
		<description>I have not read or researched Dr. Paul St. Amand or guiafenesin yet - although I have been asked to. What is your opinion?

The article above is not about him though. It is a good explanation on the benefits of exercise written by an associate of his.</description>
		<content:encoded><![CDATA[<p>I have not read or researched Dr. Paul St. Amand or guiafenesin yet &#8211; although I have been asked to. What is your opinion?</p>
<p>The article above is not about him though. It is a good explanation on the benefits of exercise written by an associate of his.</p>
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		<title>By: Anna Murphy</title>
		<link>http://www.fibrohaven.com/2009/06/17/fibromyalgia-newsletters-are-a-great-information-resource/comment-page-1/#comment-624</link>
		<dc:creator>Anna Murphy</dc:creator>
		<pubDate>Thu, 18 Jun 2009 04:13:09 +0000</pubDate>
		<guid isPermaLink="false">http://fibrohaven.wordpress.com/?p=1259#comment-624</guid>
		<description>Just curious, are you a fan of Dr. Paul St. Amand&#039;s practices with guiafenesin?</description>
		<content:encoded><![CDATA[<p>Just curious, are you a fan of Dr. Paul St. Amand&#8217;s practices with guiafenesin?</p>
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