Comments on: Fibromyalgia Affects Everyone: An Interview with My Niece

By: peanut the niece

peanut the niece — Fri, 07 May 2010 20:15:34 +0000

she’s a great girl(:
but she doesnt live with her mom:(

By: fibrohaven

fibrohaven — Wed, 28 Apr 2010 22:42:44 +0000

Rebecca, I am so please this post opened the door for you to reach out to your daughter. It sounds like there are some very deep wounds there, but by starting the conversation you can begin to heal them. You both did your best in the moment and have learned a lot along the way. There is no right or wrong way to handle chronic illness. We all make mistakes, often shutting out the ones who love us and can help us the most. I hope you and your daughter can come together and heal some old wounds. Love and forgive yourself and each other. My best to you!

By: Rebecca

Rebecca — Wed, 28 Apr 2010 21:44:37 +0000

Now that I’ve dried my eye’s . I just want to say your neice and you are beautiful people!! It’s made me want to diccuss my fibro with my 18 yr old Daughter, She has lived with it for 9 yrs. She handled it very well until She became a teenager at 15 She ran away and we are just now back in touch. I just texted her and she said it was one of the reasons she ran away, and that’s O.K. we need to dicuss it! After my I lost total use of my hands for 6 months when she was about Dani’s age she would bath me and feed me at the time no one knew why it happened until yrs later,She also had to deal with my back problems that started the whole thing I had to have Back surgery when she was 15 and it was too much for her. At the time I thought if I did’nt talk about it it did’nt exist! I wish I had known to do what you did face it head on !! I beleive both of you just gave all of us sufferers of Fibro a very special gift, God bless you and your family!! Rebecca

By: fibrohaven

fibrohaven — Wed, 28 Apr 2010 18:22:36 +0000

Well I look forward to meeting your friend Dakota. If she is half as sweet and compassionate as you are Peanut, then her mother is very fortunate.

By: peanut the niece

peanut the niece — Wed, 28 Apr 2010 17:15:19 +0000

i was showing this blog to my friend dakotaand telling her about your condition and she stopped me and told me that her mother also has fibromyalgia and i got excited and wanted to tell you(:

By: Annette Sweeney

Annette Sweeney — Tue, 08 Sep 2009 15:58:00 +0000

What a way to start my morning. Reading this was just so beautiful since you are both so special to me (or I should say special to us). Uncle Dan is going to sit down and read this now also. We love you.

By: fibrohaven

fibrohaven — Tue, 08 Sep 2009 05:48:41 +0000

Amy, please do share! Sometimes we just stumble upon the best communication tools. If this could help open the door to conversation, do it!

There are a lot of people in my life that I have just learned not to talk about it with, and that is okay. But if there is a possibility to close gaps and create understanding, it is well worth the effort.

Thanks Amy. The feeling is mutual.

By: fibrohaven

fibrohaven — Tue, 08 Sep 2009 05:43:59 +0000

Thanks Jasmine! I know I am fortunate to have her in my life, but even I was surprised at her depth of understanding. This was a good exercise for both of us. If she knew she made you cry she would totally give you a hug!

By: Amy Kiel

Amy Kiel — Tue, 08 Sep 2009 03:40:13 +0000

This interview was such a great idea and what a special relationship the two of you have. I am really wanting to share this with my niece because I am not always sure if she knows that I have fibromyalgia. I don’t know if it is my own doing or the feeling within the family that there is a “stigma” about it that we don’t seem to talk much in regards to the actual diagnosis in my family. Often people will ask if I am not feeling well, or ask what is wrong, and I feel the need to explain something in particular … this is interesting. Such a reminder of how people so often don’t “get it”, but your niece has a great grasp on it and is a very special girl, just like her auntie!

By: Jasmine

Jasmine — Tue, 08 Sep 2009 02:11:36 +0000

You have one amazing niece right there. And it seems she shares your ability to make me cry (in a good way). Great interview!