Comments on: Online Forums for Fibromyalgia Support and Information

By: Sharon Vantrease

Sharon Vantrease — Wed, 18 Nov 2009 21:49:58 +0000

I hope to find some others who are suffering from the “…..but u
don’t LOOK sick” disease! Please write me. I am so down today.
Thanks, Sharon

By: julie

julie — Tue, 08 Sep 2009 16:56:31 +0000

thats ok ann,how u feeling today,im very tired and my knees are killing me today,aching and in pain.

By: Anna Murphy

Anna Murphy — Thu, 27 Aug 2009 19:58:59 +0000

Well, I’ve checked out a couple and I know I will be spending a bit of time on Fibro Talk. Thanks for finding that one for me.

By: julie

julie — Thu, 27 Aug 2009 19:36:03 +0000

hiya,nice to meet u anna,can i join this group plz,but the thing is it doesnt say how to register with it.

By: Anna Murphy

Anna Murphy — Thu, 27 Aug 2009 16:38:48 +0000

I have found WebMD to be very light-weight and doesn’t generally offer new stuff.
You didn’t mention About.com, or was that in the first installment. I forget, sorry. Great list, though. I will definitely check out some of the others.

By: MichaellaS

MichaellaS — Mon, 20 Jul 2009 14:35:14 +0000

tks for the effort you put in here I appreciate it!

By: It’s Day 30 of My 30-in-30 Writing Assignment! « Fibromyalgia Haven

It’s Day 30 of My 30-in-30 Writing Assignment! « Fibromyalgia Haven — Sun, 31 May 2009 23:47:22 +0000

[...] Online Forums for Fibromyalgia Support and Information – Part two in my series on Fibromyalgia support and information – focus on online forums and support groups. [...]

By: Barbara (aka Layla)

Barbara (aka Layla) — Tue, 26 May 2009 03:24:07 +0000

I love your blog! I have visited a few of those sites. I used to go to Daily Strength for support with tinnitus but there were some fights going on, I could not handle people being mean to each other.

I am so sorry you know so much about fibro. Its so hard for people to understand unless they have it. I keep it quiet usually because so few people in my life support it. They think its an excuse I use. Meanwhile I met a new man and have not told him and am living in fear of an outdoor concert he wants to go to that is STANDING only. I can’t stand up for that long! I want to go but … I can’t do stuff like that anymore.

I better go before i take up all your space….

By: Kathy

Kathy — Mon, 25 May 2009 05:55:32 +0000

And one more comment…good lord woman! Did you find all those on Twitter?!! Wow! You did your homework.

By: Kathy

Kathy — Mon, 25 May 2009 05:53:57 +0000

Just one more? http://invisibledisabilities.ning.com/
This is a really robust site with forums, chats (with very nice people that sponsor the chats), blogs etc. strictly for people with “invisible illnesses”.

Too be really honest, I haven’t spent much time on it because I found it right as we were selling the house and starting the process of moving. But I’ve been keeping in contact with several people that are on the site. I haven’t met anyone there that isn’t nice…

It is a free site and I don’t understand why they aren’t publicizing it more.