Comments on: New Book on Fibromyalgia – Claims to Fill in the Missing Pieces

By: fibrohaven

fibrohaven — Tue, 09 Feb 2010 02:15:28 +0000

Lauren I had the chance to meet Dr. Sarkozi and I can tell you he is absolutely passionate about the research that went into his book and about helping people with FM. I admire that very much. I have yet to tackle his book – a tough read with a lot of technical information. I think with more and more research proving that FM is likely neurological, I am less enthusiastic about his rheumy based research. His belief is that our pain stems from osteoarthritis, but I for one do not have osteoarthritis, although I do know several people with FM who do.

If only there was one book, one person, one technique, or one pill to cure us all. Highly unlikely! You are right, healthy skepticism is good!

By: Lauren

Lauren — Mon, 08 Feb 2010 17:43:44 +0000

I appreciate your healthy skepticism about this book. The release and the website raise a lot of questions for me – especially as the language is almost trying to suggest that the methods in the book might “solve” someone’s fibro suffering.

Also, a book claiming to have found the cause of pain, where no other actual research has – is a pretty bold claim to make. The book also appears very amateur.

It would be worth a read just to see what kind of magical fairy dust this guy is offering up – who knows, he might have good advice, but I’m sure all the grandiose claims he’s making can’t be true.

By: notesalongthepath

notesalongthepath — Sun, 11 Oct 2009 21:34:16 +0000

They’ve discovered a retro-virus linked to Fibromyalgia and Chronic Fatigure Syndrome. More info here:

http://notesalongthepath.wordpress.com/2009/10/10/fibromyalgia-chronic-fatigue-virus-isolated-whoo-hoo/

By: bestremedy

bestremedy — Wed, 16 Sep 2009 06:26:21 +0000

This sounds like an excellent book. Being a fibromyalgia specalist, I am always looking for more education for my patients.

Keith Barton D.Ir.
http://www.candidatherapythatworks.com

By: Information is Power, So I am Going to Get Me Some! « Fibromyalgia Haven

Information is Power, So I am Going to Get Me Some! « Fibromyalgia Haven — Wed, 22 Jul 2009 18:55:54 +0000

[...] you remember the press release I shared with you about Dr. Sarkozi and his new book The Missing Pieces of the Fibromyalgia Puzzle? Well he is the guest speaker at my support group meeting tonight. I am very pleased to have been [...]

By: It’s Day 30 of My 30-in-30 Writing Assignment! « Fibromyalgia Haven

It’s Day 30 of My 30-in-30 Writing Assignment! « Fibromyalgia Haven — Sun, 31 May 2009 23:47:11 +0000

[...] New Book on Fibromyalgia – Claims to Fill in the Missing Pieces – Information from a press release I received – not an endorsement. [...]

By: Kathy

Kathy — Sun, 10 May 2009 02:07:42 +0000

The news release for this book looks like a whole lot of filler. The website for this book looks like a whole lot of filler. It does have a “fibromyalgia pain store” that has some pillows and some arch supports (wtf?). And the glowing recommendations (all two of them) don’t exactly come from a “who’s who” of fibromyalgia. Maybe if they send you a free copy to review, I’d read it…but right now I have a bookcase full of fibro books, and the advertising for this one doesn’t exactly make me want to run out and buy it.

Maybe I’m a little grumpy because I just got done with the garage sale from h*ll and I’m in a ridiculous amount of pain. We have a 2300 sq.ft. house and I needed to get rid of stuff…and none of the charities out here pick stuff up. So I craigslisted it for free. What’s wrong with free? Who knows. But it was a long day and I still have lots to get rid of. Maybe the new owners will need a couple of bookcases and at least a dozen vases. Oh and literally hundreds of CDs and PS games? Hate to take them to the dump…