Comments on: Leave a Comment, You May Make a New Friend

By: Jackie Fontes

Jackie Fontes — Tue, 10 Aug 2010 12:26:55 +0000

I love this! I too found that in a support group I was running that so many–when we decided to just do something found we all were better–by renewing our favorite or past hobbies/crafts etc.
For me it is pictures. After all what are pictures? They are for me a visual of times/people or places that was so impressive we took the photo shot! I found mine by accident-literally. I fell out of my bed at that time bedridden. laying crying and tried to use the night stand to assist in getting me off the floor. Knocked it over-of course–but also tumbled several photos to the floor. The first was a picture that is one of those that just makes one smile or laugh out loud every time I see it–because I relive-/hear the giggles from then my baby sister-about 3 with numerous kittens all over her–on her head-clinging to her pants/sweatshirt etc and a smile that speaks volumes–well then a few more came up and before I knew it I was rolling with laughter and had stood up and had walked down the stairs and from that day forward–I use photos to heal myself–remove pain. I have had more than my share of surgeries and use it in place of drugs. Told the group and they all started looking for”their own” laughter/joy zone. Some craft-others cook other–well we all started benefiting from my fall. It is one of God’s free gifts that heal.
Later many years later–I read in the FM Network’s newsletter that science had proven that the human brain is incapable of experiencing 2 strong signals at one time for any length of time/prolonged time. Laughter trumps pain–why I do NOT know–nor do I care–just happy as all get out that it does!
I love the positiveness of this site! Great job/place!

By: fibrohaven

fibrohaven — Sat, 04 Apr 2009 22:32:32 +0000

Clarissa I am going to help in any way you need to get your blog up and running. I am so honored that you said you feel safe here. That is so important to me, and I know you will create the same environment on your own blog.

One of my greatest moments with the support group was when our presenter Paul turned to you and expressed how he was drawn to your energy and spirit. That is how I felt about you too when I first met you and I think you need to share your spirit through your writing. It will benefit you and everyone who reads you!

Thank you for sharing. You are wise and I am so happy to call you a friend!

By: Clarissa

Clarissa — Sat, 04 Apr 2009 04:29:03 +0000

I really appreciate the openness that you all have shared here on Dannette’s blog. Makes me want to start my own as I believe journaling, gets a lot out . It takes a lot to be so candid and share openly like that, at least for me it does as I am a private person and more apt to listen than share. I feel safe here so I share plus, I know Dannette personally and she is a good egg.

I have been through a lot in my little life and I really do not know the date of when my FM all started. It could have started as a young teenager when my Mom was going through a abusive marriage for years. My father too took the easier road, after divorcing my mother by never being there and taking care of himself rather than his 2 children. So, sure I think there’s a connection there. Thats a lot of stress too and what does stress do to us? We all know that question. As I have grown older and hopefully wiser, I realize none of this was my fault but regardless, I had to experience it. Experience has made me a better person, Mother, wife and daughter and you know you grow from all these things life throws at you or you at least try. I have struggled trying to understand WHY these things happen. I am spiritual and I ask God, what am I supposed to learn from these things? I try to stay receptive and listen to what God may be telling me. I have had PTSD, may have some of that remaining and I did EMDR and hypnosis and I think it helped me, along with many months of therapy trying to wrap my head around what happened to my son and family.

In short, I think it would be wise to say, there is a connection with stress, PTSD, trauma and illness. just my 2 cents.

By: fibrohaven

fibrohaven — Fri, 03 Apr 2009 15:46:41 +0000

Hi Shelley! It sounds like you are going to have an amazing event. How long did it take you to plan for/organize it? Thanks for reaching out to me here.

Since my group is only a few months old I did not have the time or help to prepare a big event, but we are going to have a family & friend awareness social. I will be inviting past presenters and sponsors. Members can bring anyone who supports them or who they would like to educate about FM. Basically we are having a picnic! I hope it turns out.

By: Kellie Robinson

Kellie Robinson — Fri, 03 Apr 2009 14:48:23 +0000

I love you too Lara!

By: Shelley in DFW

Shelley in DFW — Thu, 02 Apr 2009 05:01:19 +0000

Its good to find more Fibro peeps out in the real world. I just wanted to ask what you are doing for National Fibromyalgia Awareness Day?

I am quite busy contacting media, representatives of Texas, news sources, etc. We are planning a huge cross Dallas awareness. What are you doing?

By: fibrohaven

fibrohaven — Wed, 01 Apr 2009 06:25:25 +0000

If I didn’t have such a great support system I could not be so strong. Thanks for everything sis! Love You.

By: The Big Sis

The Big Sis — Wed, 01 Apr 2009 04:14:14 +0000

Well, let me tell you all…… it is real easy for me to be the great big sister to a little Sister who is so strong, intelligent, caring and lovable. I am the one who is blessed to have some I am so proud to say is my little Sister, this strong woman who is a survivor and who has stepped up to make a difference. Yes, Sis you have made a difference. People like you make a difference in this world. So you stand on your soap box and shout as loud as you need to for people to hear you and finally get it. So you go girl. LOVE YA The Proud Big Sis

By: fibrohaven

fibrohaven — Wed, 01 Apr 2009 03:15:21 +0000

Lara I love your comment! I too have a loving and supportive sister – my big sis. She has been my biggest advocate when dealing with Fibromyalgia. I am happy to know that Kellie has an awesome sister too. Thanks for sharing.

By: Lara Garcia

Lara Garcia — Wed, 01 Apr 2009 02:51:59 +0000

I’ve been sitting here with tears rolling down my face as I read all of these beautiful words about Kellie. Not only is she a very passionate artist, she is extremely loving and funny. I can say this because I have known her all of my life….she is my big sister. We were all of course very saddened to hear of her diagosis of fibro, but also very confused because there just isn’t that much information about it. Kellie has really educated us about it. Keep up your chin and the beautiful bead work Pee Poo. I love you!