Comments on: It's a Gluten Thing!

By: Emma

Emma — Fri, 05 Mar 2010 05:59:25 +0000

I have just started trialling a gluten free diet, am on day 5 and am starting to feel like I have more energy. I was VERY skeptical thinking it was a bit of a fad, but had to try something. I am hoping that from here on I will also experience the relief in my muscular pain.

By: fibrohaven

fibrohaven — Wed, 03 Mar 2010 16:07:55 +0000

Good luck to your wife James. I hope it benefits her as much as it has me. And thanks for the tip about medications and supplements. Not everyone is aware that some may contain gluten.

By: James

James — Wed, 03 Mar 2010 14:29:40 +0000

Good for you! My wife is on day 5 of a gluten-free diet, she is trying it to help her fibromyalgia pain, it’s been working well so far. You might want to check your medications and supplements. She found that many of them that she was told would help with her fibromyalgia actually contain wheat, and most likely gluten!

By: More Change, More Adaptation, and a New Door | Fibromyalgia Haven

More Change, More Adaptation, and a New Door | Fibromyalgia Haven — Mon, 15 Feb 2010 22:41:04 +0000

[...] past year I have been writing about all the changes I have made to improve my health – yoga, nutrition, support group, writing, etc.. Now that I am a working girl again, we will get to see first hand [...]

By: Suzanne Shaddix Cox

Suzanne Shaddix Cox — Wed, 30 Sep 2009 18:35:52 +0000

Since my earlier post, I’ve come across something worth investigating, at least for my situation…Last month, I had swine flu, and while discussing the symptoms with someone else who has fibro, I mentioned that I had only had a very low fever with the flu and I suspected it was because my usual body temp was well below normal. I have seen it range from 95.8 to 98.1 …98.6 for me means I have fever. She commented that her temp was also low. That sparked my curiosity, and I began to wonder if a low temperature was the norm among people with fibro. I found several websites that talk about low temp, with some mentioning “Wilson’s Temperature Syndrome”. I did a search on WTS through the US Gov. website to see if it is a legitimate thing, and it took me to this pubmed article:
http://www.ncbi.nlm.nih.gov/pubmed/16883675
Interestingly, the symptoms listed in this article and on the other websites are pretty much the same as those of fibro. I’m now wondering if WTS and fibro are not one in the same. I’d be interested to know if any of you also have low body temp. My blood pressure and blood sugar also tend to be below average.

I showed the article to my MD and she did a thyroid check. T3 was within the normal range, but T4 was bordering low. She put me on the lowest possible dose of Synthroid (Levothyroxine) .025MG and said if it doesn’t help, we would try the therapy recommended for WTS. My temperature is still low, and haven’t had significant improvement in the pain and stiffness, but the very first night on the T4 med, my sleep started to improve, and I don’t seem to be getting the blood sugar dips that were making me feel the need to eat so frequently. I think there is a good possibility that my “fibro” is WTS. If that’s the case, WTS is correctible, so I am beginning to see light at the end of the tunnel!

By: Best Chocolate Cake Ever! Just Happens to be Gluten Free « Fibromyalgia Haven

Sat, 09 May 2009 20:40:51 +0000

[...] 9, 2009 by fibrohaven I recently made the health and lifestyle change to eliminate gluten from my diet. As a result I have more energy and brain function, and I have lost several pounds without much [...]

By: fibrohaven

fibrohaven — Fri, 08 May 2009 04:12:17 +0000

Hi Gloria! Thanks for the comment and thanks for sharing you blog here. I will definitely spend some time on it. I am still in need of good resources to help me. I would love to know how or if your Fibromyalgia symptoms have improved since finding out about your gluten sensitivity.

P.S. Thanks for adding me to your blogroll! Very cool.

By: fibrohaven

fibrohaven — Fri, 08 May 2009 04:07:49 +0000

Thanks! I am glad reading my experience and the comments left by others is helping you make the adjustment. It has been over two months for me now and it is getting easier and easier. I feel healthier, which makes me not crave the foods I thought I would be missing so terribly – bread, crackers, etc.

I have not tried any enzymes, but I do take Takesumi which is a bamboo carbon for detox. It is supposed to help with the symptoms of gluten intolerance, and I have also been told that if you bake it into a regular loaf of bread it will make it so you can eat it with no symptoms of intolerance. Haven’t tried it and I don’t think I plan to, but just thought I would mention it. Good luck!

By: gloria

gloria — Thu, 07 May 2009 04:19:26 +0000

Hi
my name is gloria and I live in MA. I also have fibro and a host of other auto immune illnesses…I to recently found out I had a sensitivity to gluten. I decide to blog about gluten so if you want to take the journey with me check out my blogspot at http://www.women-woman.blogspot.com

I look forward to reading your blog and sharing.

By: scarlettinvictus

scarlettinvictus — Wed, 08 Apr 2009 13:26:43 +0000

Suzanne – I find myself in a very similar boat. When I was diagnosed FM and CFS my doctor immediately suggested I change my diet – my concerns weren’t of gluten though, but of refined sugars and flours. I had wanted to cut out the “crap” for some time in an effort to lose weight, but it wasn’t until I BELIEVED they would make me FEEL better as opposed to just looking better, that I really gave it my all.

These days, the grain products in my kitchen are all whole grain – long grain brown rice, quinoa, whole grain whole wheat, etc. I avoid sugars and most starches whenever possible. (I can usually feel it for a couple days if I “cheat.”) I am eating low-carb, my diet now consists predominantly of lean proteins and fresh veggies. And I FEEL so much better… and I’m lookin’ better to boot LOL.